Newly diagnosed with liver cancer, having trouble coping

Posted by joemina @joemina, Oct 27, 2024

Just diagnosed with liver cancer 4 days ago. Looks to be an early diagnosis. Still my anxiety and thoughts are all over the place. Any help or advice will be appreciated. Are there zoom or online cancer support groups. Joe

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@ttwoodell

My boyfriend is in the last stages of HCC. Your stress and worry, we know all to well. Hang in there. I pray it's not too advanced.
Tina

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@ttwoodell, welcome. How is your boyfriend doing? Is he currently on treatment? How are YOU doing?

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Liver cancer very small tumour waiting to have cyber knife treatment in a few weeks, worried but positive

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@phillydawg

Great news. I had a 3.5 cm tumor treated with Y90 November 2023 and they killed it. Had MRI every 3 months since and no new activity. Health is good. Went on transplant list May 2024 with exception points. Hoping for good news soon.

How big were your tumors? Are you on the wait list?

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Wow! Thats encouraging. Last year they discovered a 12.5cm tumor on my liver. They did a resection and removed it. Now a have a new 2cm tumor. I have completed the mapping and will be getting the radiation this monday. Hoping to get an exception to get listed . I was told their is very little side effects but your telling me about extreme fatigue. How long did it last??

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I’m sorry you’re dealing with this once again. Wishing you the best.

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Thank you! Biopsy came back they took 3 samples it's adenocarcinoma same kind that was in my pancreas that they took out . The biopsy showed extensive necrosis which I guess is dead tumor in the middle but still alive on the outside. I am on chemo again hopefully this will work. Don't know if anyone else has had this . Was wondering what was done for you. Hoping to get on a clinical trial or that the chemo will do it's job. Different chemo regiment this time. Also wanted to find out more about Histotripsy. Has anyone done this treatment? Hope everyone the best . Keep on fighting and don't take NO for a answer.

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My boyfriend is in the last stages of HCC. Your stress and worry, we know all to well. Hang in there. I pray it's not too advanced.
Tina

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@kbower1611

May I ask what is Y90? Is that a treatment or medication? Why I have started chemo before they have got back my biopsy is because I had the Whipple procedure in October for pancreas cancer. When I had my 3 month blood test (CA-19) it was in the 3000's also had CT scan the same day showed that I have 5 spots on my liver biggest one being 2.6cm next one was 2cm the other 3 are 1cm. Which all grew in three months time weird but ture and also had radiation while I was open. So when I met with my oncologist in January 2025 she told me that there was no hope even though I just had the biopsy and results aren't back yet. By the way I have requested a new oncologist because I don't think she has my health in my best interest. Fills like she is not fighting for me. I was a basket case for days had to get my positive back on track. I feel great best that I have since this all started last year in January. I have energy eating well so the fight and positivity is going well and it not the end because I am not going to let what one oncologist said defeat me. So if you can please let me know what the Y90 is it would be greatly appreciated so I can ask my new oncologist about it. Everyone stay positive!!!

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May I ask what is Y90? Is that a treatment or medication? Why I have started chemo before they have got back my biopsy is because I had the Whipple procedure in October for pancreas cancer. When I had my 3 month blood test (CA-19) it was in the 3000's also had CT scan the same day showed that I have 5 spots on my liver biggest one being 2.6cm next one was 2cm the other 3 are 1cm. Which all grew in three months time weird but ture and also had radiation while I was open. So when I met with my oncologist in January 2025 she told me that there was no hope even though I just had the biopsy and results aren't back yet. By the way I have requested a new oncologist because I don't think she has my health in my best interest. Fills like she is not fighting for me. I was a basket case for days had to get my positive back on track. I feel great best that I have since this all started last year in January. I have energy eating well so the fight and positivity is going well and it not the end because I am not going to let what one oncologist said defeat me. So if you can please let me know what the Y90 is it would be greatly appreciated so I can ask my new oncologist about it. Everyone stay positive!!!

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@phillydawg

Great news. I had a 3.5 cm tumor treated with Y90 November 2023 and they killed it. Had MRI every 3 months since and no new activity. Health is good. Went on transplant list May 2024 with exception points. Hoping for good news soon.

How big were your tumors? Are you on the wait list?

Jump to this post

Congratulations! It is amazing how far medicine has come. We are so lucky that there is hope even when things look dire. Good luck with your transplant journey.

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