Newbie & scared

Posted by simone1 @simone1, Jul 25 9:07pm

Hello,

I just found out I have breast cancer ( stage 1) first I was in shock,
next came depression and crying. I'm just scared and need someone to talk to in this group, thank you

Interested in more discussions like this? Go to the Breast Cancer Support Group.

Colleen Young, Connect Director | @colleenyoung | Sep 27 12:12pm

In reply to @jmc7003211953 "I am a newbie x 2 weeks. It is invasive lobular carcinoma. My surgery for a..." + (show)

Hi @jmc7003211953, I think you question about the likelihood of recurrence with or without anti-estrogen receptive oral therapy is a reasonable question. As an RN, you know that the answers are never complete guarantees. There are so many variables.

I think these 2 resources may be helpful for you:
– About Oncotype DX https://breastcancernow.org/about-breast-cancer/diagnosis/oncotype-dx/
– Is There a Role for Oncotype Dx Testing in Invasive Lobular Carcinoma? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4995885/

Has Oncotype been discussed with you? Is it appropriate for your decision making? How are you doing?

Colleen Young, Connect Director | @colleenyoung | Sep 24 8:26pm

In reply to @grandmabecky "Hi...brand new to the club no one wants to join - just received my diagnosis on..." + (show)

@grandmabecky, I thought I'd check in. Did you get more information about your diagnosis and treatment plan? How are you doing?

jmc7003211953 | @jmc7003211953 | Sep 13 1:44pm

In reply to @windyshores "Sorry you are dealing with this suddenly. Many of us have been there and are fine..." + (show)

I am a newbie x 2 weeks. It is invasive lobular carcinoma. My surgery for a lumpectomy with a larger margin is in 5 days. I am a RN who worked as an outpatient and my latest employment was a nurse in a inhouse hospice facility so I have seen and know more than I want so yes, I am not so scared of the diagnosis but it is the "Invasive" portion that I am scared about. I have read up on my diagnosis which probably is not be a good thing to do but I did it anyway. My surgeon oncologist said I will need radiation of unknown length of time and a anti-estrogen receptive oral therapy and I read for 5 to 10 years duration. How prone is metastasis disease with this oral medication route? Does anyone know the answer to my question.
I don't need an exact answer but I would like to see if one could tell me what they think.

Chris, Volunteer Mentor | @auntieoakley | Sep 13 10:37am

In reply to @grandmabecky "Hi...brand new to the club no one wants to join - just received my diagnosis on..." + (show)

Welcome to connect. I am glad you found us. This is such a shocking and scary time. I remember it like it was yesterday.
Connect is a pretty great place to get information and support.
When you got your diagnosis, do want to share more of that diagnosis?

pgsuer | @pgsuer | Sep 12 6:42pm

Hello!
I had an aesthetic breast reduction last June 2023. The pathologist detected DCIS. Has anyone had the same problem?

lisman1408 | @lisman1408 | Sep 12 11:11am

In reply to @grandmabecky "Hi...brand new to the club no one wants to join - just received my diagnosis on..." + (show)

Hoping all goes well for you! Everyone who posts on this forum will be rooting for you to receive the best care possible. Please post often, to keep us up to date with your progress!

grandmabecky | @grandmabecky | Sep 11 1:02pm

Hi…brand new to the club no one wants to join – just received my diagnosis on Friday of last week and spent the weekend in shock and tears, of course. Waiting to hear from the surgeon about what she feels the best plan of action will be in my case.

jfhpink | @jfhpink | Sep 10 1:41pm

In reply to @auntieoakley "Welcome to the club no one wanted to join, but we are all in this together,..." + (show)

Hi Chris, yes I will surely come back and I appreciate your response. Thank you!!!

maliamd | @maliamd | Sep 10 9:23am

We are all warriors here!!!!! Fight on!!

Chris, Volunteer Mentor | @auntieoakley | Sep 10 9:08am

In reply to @jfhpink "Hi everyone, Also new to this group. I recently posted about my lumpectomy which was on..." + (show)

Welcome to the club no one wanted to join, but we are all in this together, even if we aren’t together. 😁 some of us are newbies, but I lurk on this page just to attempt to bring comfort where I can. I am 20 years from my initial diagnosis. I have had a few hiccups along the way, but I am living life like someone left the gate open most of the time. My wish is for my journey to bring hope and encouragement to others.
I know waiting for results is hard and the day before surgery is an anxious kind of day, but I am waiting with you. You got this❣️
Will you come back and here and let me know how you are doing after surgery?

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