Newbie here, just got a PSA score of 12 with no prior symptoms.

Posted by whezzymcduff @whezzymcduff, Jul 29 12:56pm

Im a 71 year old with a high PSA score of 12, I'm a little concerned what my journey is going to be. I've had bypass open heart surgery and a history of blood clots and obviously without knowing my Gleason score and other pertinent factors it's difficult for you guys to offer advice. I am just hoping for some guidance. I downloaded a book by Patrick Walsh and it was helpful but I wanted to hear from people who've been through it.

Thanks for your help.

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Greetings:
Sorry to hear about the high psa #, however it MAY not be as bad as it seems, because other things, specifically BPH can cause a high reading.
In my case the psa was over 20, however i had BPH which probably masked the cancer.
You may want to have several psa tests to see how fast, it at all, it is doubling. Generally if it is slow growing you may want to just watch it.
You may want to have a PSMA-Pet (if available in your area), to see if there is any cancer in other parts of the body. If it is negative that is a very good sign.
In other words, it is possible that you do not have cancer, and i hope that is the case for you.

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@carlwgordon
Very good question and glad to answer.

Now this comes from my Mayo PCP, urologist, UFHPTI R/O and Mayo R/O not me in anyway trying to infer I am a medical expert on this.

PSA numbers do not determine if you have cancer or not cancer. Many factors can cause high PSA numbers and not cancer. A poster had a good analogy of PSA when starts to rise it is like a "check engine" light on your car dash.

PSA numbers below 4 are considered normal. For years my PSA was .75 and stayed the same.
Then about 6 years ago it started to rise. My Mayo PCP asked me not to ride my bike prior to PSA test to see if that was causing rise. I would ride 20-25 miles. I stopped riding my bike a week prior to test and it continued to rise.

He did not like that and I was not having BPH symtoms. He started doing PSA test every 3 months. The numbers continued to rise and referred me to urologist. That urologist did a DRE (normal). Then ordered a MRI/Contrast which showed suspicious areas. Urologits did MRI/fusion biopsies and they cam back positive for prostate cancer.

At the time of my biopsies my PSA was 3.75 which is normal. What you will see posters post here is that the rising PSA numbers are the key to something wrong. You can have prostate cancer and have normal PSA numbers and you can have abnormal PSA numbers and not have cancer.

So to answer your question it was the rising PSA numbers test after test that my PCP did not like. I did not have symptoms of BPH or prostate cancer.

You have a normal PSA. Has it been rising at every PSA test? You mentioned leaking do you have symptoms of BPH?

If your PSA numbers stays at 2 I and speaking for me and my experinece not giving you medical advice would not be worried and would work with my PCP to continue testing. If my PSA was continuing to rise I would asked to see a urologist. The leaking and PSA could just be BPH and even a rise of PSA could be caused by BPH, infection, irritation, etc.

Do you have any symptoms of BPH other than leaking. What I found was as I got older I started to leak more. You can do kegel exercises to help with that. You can always asked for referral to urologist who can do a DRE to examine the size and feel of your prostate.

Jump to this post

Since 2011 PSA was .97 riding about .07 a year now 2025 at 2 .I do Ed other then slight very mild leakage okay. Thanks for your very informative answer. It's was appreciated.

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You have very good advice here from all. Remember, you (and your family or personal support) are your best advocate. Never hesitate to question what you are told and to seek a second opinion. After 8 months of missed diagnosis, I was diagnosed (finally) at 73, stage 4 Gleason 4 + 5. Metastasis to pelvis, spine and ribs. PSA never > 4.0. Initial diagnostic work was at a major university medical center. Told I had BPH and it takes months for tamsulosin to work. Symptoms progressed, never was scheduled for a urologist, NP only. MRI is “backed up”. So was I. Went for a second opinion, diagnosed in a week, TURP and chemo the next week. Currently on Yonsa and Lupron. Scans the past 2 years have been clear, another round this week. I consider PC is another challenge adventure in life that is to be dealt with and defeated. Don’t blindly trust in your medical system if it does not seem right. Hopefully you will not get the positive diagnosis. If you do, go into treatment optimistically and with the best team that you can find. Stick with this support and discussion group, there is an immense amount of information here based on experience. Best wishes to you.

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Take a deep breath and don’t get lost in the weeds. Always look for outcome studies not the calculus equations and molecular biology. A urologist is a surgeon so guess what his bias is going to be. Instead look for an oncologist who specializes in prostate cancer. He will not push surgery unless it’s clearly necessary. If you need a surgeon he will refer you. Try to get someone you are comfortable with. Outcome studies mean that you want to live longer or have less symptoms. If the treatment does neither think carefully before you chase after perfection. These surgeries and radiation treatments have terrible side effects at times. On every treatment you should know the risks, benefits and alternatives before you sign on. Prostate cancer is usually very slow growing and in medical school they teach that usually you die with prostate cancer not from it. Good luck.

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