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Posted by hkc9890 @hkc9890, Dec 12, 2020

I was diagnosed Wednesday before Thanksgiving, invasive ductal carcinoma, triple negative. Next Tuesday meet the multidisciplinary team. I am a Nurse, but no oncology experience and waiting to hear what’s in store. Anybody have the same diagnosis and have any advice while I’m waiting for the plan?

@hkc9890

Hello all! I made it through the appointments and the sea of information! The multidisciplinary team has recommended PET Scan and Breast MRI and I agreed. The Medical Oncologist did such a great job of explaining the need for additional imaging and how it could help with deciding treatment. It was a little hard to hear that I have an aggressive cancer, but very glad we are being thorough. I am confident that I can beat this with the team I have in my corner. I will be starting with a total of 20 weeks of weekly chemo treatments. (12 weeks of Taxol, then 8 weeks of combination Adriamycin & Cytoxan). Next, I met with the surgeon and he was stating I am a candidate for lumpectomy. I would like breast conservation, but not opposed to Mastectomy. I have genetic testing and imaging that could change some of this plan… Finally, I met with the Radiation Oncologist and would need about 4 weeks of therapy, if I was able to get lumpectomy. Of course, all of this depends on pending testing. All of the doctors came in and conveyed the same message and treatment plan. It was actually a good experience, considering what I was there for.

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@hkc9890, thank you for sharing your experience with all of us. It sounds like you are getting very good care. I wish you the very best, and a speedy recovery. We are here for you!

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Thank you for your nice welcome to the group.

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@breerin

Thank you for your nice welcome to the group.

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Hi @breerin, grab a cup of tea and pull up a chair to the circle. Tell us a bit about yourself. Have you recently been diagnosed with breast cancer?

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Hello. I have a similar diagnosis, and am also a member of the medical profession. I would say , don’t initially stay glued to the internet. Surround yourself with positive people. And ask questions. You got this❤️

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Just an update*** I have no evident metastases and genetic testing was negative. All great news, I believe. Happy Holidays!

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@hkc9890

Just an update*** I have no evident metastases and genetic testing was negative. All great news, I believe. Happy Holidays!

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Great news!

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@hkc9890

Just an update*** I have no evident metastases and genetic testing was negative. All great news, I believe. Happy Holidays!

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Hello @hkc9890,

I am so pleased to hear your good news! When will you start the first phase of treatment?

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@hopeful33250

Hello @hkc9890,

I am so pleased to hear your good news! When will you start the first phase of treatment?

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December 29th will be my first chemo treatment. I was supposed to work that day and have switched days with a co-worker. I am starting with Paclitaxel. I am being told it's pretty tolerable. I will have it weekly for 12 weeks. Does anyone want to share their experience with this chemo? I just don't know what to expect.

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I can tell you about my chemo treatment process, I was at Mayo Rochester so your location may be different.

1.Prior to chemo appts., I had anti-nauseous drugs' (pills) that I took at home.
2. I had blood test prior to each chemo. It was to check few items to make sure safe to give chemo. This was more important toward end of chemo treatments. My test were always OK, but if your hemoglobin or other key test are outside of normal, they may postpone chemo for a week. Toward the end I was very tired so the oncologist postponed one treatment.
3. Also, they always weight me. I think the pharmacist needs info while preparing medication I learned to wear shoes that were easy to take off and on.
4. You might want to bring something to read. Sometimes I bought crochet to work on during treatment. If like music, maybe set headphones to listen to music.
5. Will start an IV
6. May give you anti-nauseous pills to take.
7. Next will start drugs
8. Nurse will monitor to make sure you do not have a reaction.
9. I was doing chemo pre-COVID, and they usually provided something to drink and snacks.
10. My nurses were wonderful always there to answer questions and make sure I was comfortable.
11. At end, IV removed and ready to go home.

I am single and always went alone, never needed someone to drive me there or home. I had some side effects, but everyone is different. If you do have side effects, speak up.

I did lose hair around week 3. I had shaved head right away. For me, losing hair was not a big deal. I did buy wig and only wore once. I order some head covers from amazon.

Good luck.

Laurie ,

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@roch

I can tell you about my chemo treatment process, I was at Mayo Rochester so your location may be different.

1.Prior to chemo appts., I had anti-nauseous drugs' (pills) that I took at home.
2. I had blood test prior to each chemo. It was to check few items to make sure safe to give chemo. This was more important toward end of chemo treatments. My test were always OK, but if your hemoglobin or other key test are outside of normal, they may postpone chemo for a week. Toward the end I was very tired so the oncologist postponed one treatment.
3. Also, they always weight me. I think the pharmacist needs info while preparing medication I learned to wear shoes that were easy to take off and on.
4. You might want to bring something to read. Sometimes I bought crochet to work on during treatment. If like music, maybe set headphones to listen to music.
5. Will start an IV
6. May give you anti-nauseous pills to take.
7. Next will start drugs
8. Nurse will monitor to make sure you do not have a reaction.
9. I was doing chemo pre-COVID, and they usually provided something to drink and snacks.
10. My nurses were wonderful always there to answer questions and make sure I was comfortable.
11. At end, IV removed and ready to go home.

I am single and always went alone, never needed someone to drive me there or home. I had some side effects, but everyone is different. If you do have side effects, speak up.

I did lose hair around week 3. I had shaved head right away. For me, losing hair was not a big deal. I did buy wig and only wore once. I order some head covers from amazon.

Good luck.

Laurie ,

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Thank you so much for your insight. I appreciate it.

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@roch

I can tell you about my chemo treatment process, I was at Mayo Rochester so your location may be different.

1.Prior to chemo appts., I had anti-nauseous drugs' (pills) that I took at home.
2. I had blood test prior to each chemo. It was to check few items to make sure safe to give chemo. This was more important toward end of chemo treatments. My test were always OK, but if your hemoglobin or other key test are outside of normal, they may postpone chemo for a week. Toward the end I was very tired so the oncologist postponed one treatment.
3. Also, they always weight me. I think the pharmacist needs info while preparing medication I learned to wear shoes that were easy to take off and on.
4. You might want to bring something to read. Sometimes I bought crochet to work on during treatment. If like music, maybe set headphones to listen to music.
5. Will start an IV
6. May give you anti-nauseous pills to take.
7. Next will start drugs
8. Nurse will monitor to make sure you do not have a reaction.
9. I was doing chemo pre-COVID, and they usually provided something to drink and snacks.
10. My nurses were wonderful always there to answer questions and make sure I was comfortable.
11. At end, IV removed and ready to go home.

I am single and always went alone, never needed someone to drive me there or home. I had some side effects, but everyone is different. If you do have side effects, speak up.

I did lose hair around week 3. I had shaved head right away. For me, losing hair was not a big deal. I did buy wig and only wore once. I order some head covers from amazon.

Good luck.

Laurie ,

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Great post! So important to know ahead of time!

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