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New to this forum, please help me, have SMALL FIBER NEUROPATHY

Posted by alladria @alladria, Mar 19, 2019

Hello
I just found this website and have a question. I would appreciate your help. I'm sorry for my English, it's not perfect.
It's been a year since I'm having pin and needles sensations mostly on left side of my body, but sometimes on the right side but not much. Firstly I could feel it only in my left foot, now I can feel the buzzing, burning and tingling in my knee, around my left eye as well, my heart is also behaving strangely lately. My doctor ordered MRI of my spine which showed that L5-S1 disc bulge is pressing the descending S1 nerve root. I also had a skin biopsy performed. Epidermal nerve fiber ( ENF ) studies showed borderline low ENF densities in the left calf and thigh with minimal perivascular chronic inflammation in the calf and negative stains for amyloid. Is it possible that the pinched nerve in my spine is causing Small Fiber Neuropathy ?
Thank you very much for any help.

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salsa | @salsa | May 3, 2019
In reply to @jager5210 "I'm curious. Doctors swear by epidurals. I had 3, 2 were guided. Best effect lasted less..." + (show)
@jager5210

I'm curious. Doctors swear by epidurals. I had 3, 2 were guided. Best effect lasted less than a week. I'm guessing I've talked to well over 20 people who have had epidurals for back pain. No one reported any improvement. I wonder what the experience is in this community.

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i have had 8 epidurals, only one did not work, the others provided relief for quite awhile, but in the end it only masks the issues, eventually symptoms come back, but I would say they have been beneficial for me in the long run

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markmoran3 | @markmoran3 | May 3 3:14pm
In reply to @dwilkin "These are hard to know. I have cysts and lesions in and around my lower spine...." + (show)
@dwilkin

These are hard to know. I have cysts and lesions in and around my lower spine. I have small fiber neuropathy diagnosed via a skin punch test. In my case, I had similar symptoms in different joints. Consider any trauma to your body via viruses, surgery or bacterial issues to see if those may have contributed to your current symptoms. In my case, I had a malabsorption problem from abdominal surgery 7 years ago and the lack of vitamins/minerals that are absorbed in the lower intestines resulted in nerve damage. It took 4.5 years of doctors to get the proper diagnosis. Now that I know the underlying cause, I can address it. I’m getting better. Small fiber nerves can regenerate. It ain’t easy but if you find out the “why” you have a shot at reversing it. The odds are not great and many cases are ideopathic, but I can tell you it can be solved. Best of luck and I hope this helps. Btw, cut out sugar, gluten and dairy. Very inflammatory. PS. The back problem could be it. Welcome to the journey 🙂

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How did u find out malabsorption? I question this and my vitamins sre normal

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