New stage 4 diagnosis for my wife

I’m heading down to do this trial on Tuesday this week. I wish your wife Good luck!

They are so talented.

Have you tried gummies? For me, they seem to help, but I do not have a lot of pain yet. I cannot take oxy, because of the constipation. And I had to stop taking Creon for the same reason. I had a Celiac nerve block and it has helped the pain. I was diagnosed 4 months ago with Stage 4 pancreatic cancer and was starting to get pain. The nerve block has helped a lot. At 92, I opted out of any treatment or chemo and am really at peace with that decision.

We have had the gummies and they do help, especially at night before bed..

Have she tried to drink Boost or Ensure. Creon help me alot when I was first diagnosed. Just make sure you try to stay away from foods that have alot of fat in them which is kinda hard in it's self because you don't realize that there is fats in alot of things. I had to sleep in a recliner with heating pad to get any comfort. But gummies also helped didn't find them until later. The best thing is to stay positive! There is all kinds of new medicine coming out every day you never know what one may help you. I had the same things as your wife has had done in the small amount of time also. In fact I had port put in and 3 days later chemo. After chemo was done I had a break and started 28 days of radiation while taking a chemo pill. Had another break and then had the Whipple surgery. While I was open the hit me with IORT radiation. I thought that everything was going to be find because it was stage 1 when we found it and my team gave me a good outlook. At my 3 month check up had a CT scan pancreas was good but it had went to my liver. So started chemo again different regiment and then I got into a clinical trial and the clinical trial Doctor said to get off the chemo I was doing wasn't helping at all other than made me lose my hair. I am now on a clinical trial which I found out I have a rare mutation Kras Q 61. First scan after 6 weeks showed 2 tumors have grown. Had another liver biopsy 3rd one this year can't count how many CT scan I have had. He is trying to figure out what to do next. I feel great but I have a very positive attitude that I am going to beat this . My clinical trial Doctor went to a conference in Chicago I think it was a couple of months ago and said that they are coming out with new trials all the time so hopefully can try something else or maybe being on this one a little longer it will kick in and start working. Tell her to stay positive and don't give up it's not your time until the big man says. Wishing you and your wife the best!

Thank you for the great note. We are always hopeful that we will find something new to help combat this miserable disease. We just started chemo last week, side effects were about as expected..
We have tried those drinks but are too sweet tasting for her. It makes it difficult to get her tro eat that type of high / protein drink..
very good to hear your pain levels are low. Best of luck and hopeful thoughts and prayers going your way..

How well does she tolerate the keytruda?

Not sure which regiment of chemo she is on but some of them make your food taste funny. Like it doesn't taste like you remember so what ever she wants get it for her. I lost 20lbs before I even went onto chemo and then lost 20lbs while on chemo then lost 18lbs after surgery just make sure she eats. I was eating sugar free jello, plain pasta , mashed potatoes and then I would crave things like shrimp, pineapple and Mexican foods weird I know but at least I was eating. She needs to keep her strength up. Have you tried to put the Ensure into like a milkshake from but instead of ice cream just put it into a blender with ice maybe it would make it less sweet for her. I know some of the flavors were not that good. Good luck to you and your wife.

No issues with it as of the first round. Every six weeks

@uni2025 I make my own protein drink so they aren't sweet. I use Orgain, or a vegan protein powder, vanilla flavored, mixed with 8oz of unsweetened almond milk and 1/2 banana and then I add about 2oz of filtered water to thin up the shake a bit and mix in the blender. Hope you and your wife are doing better.