New PET scan questions

Posted by lizzymarie @lizzymarie, Sep 4 7:50pm

Hi I have MBC with mets to liver and bone. My most recent PET scan last week says the following results:
Multiple new diffuse hypermetabolic hepatic metastases….and Heterogeneous hypermetabolism throughout both lobes with some associated ill defined hypodensities including hepatic dome measuring 4cm, and multiple areas in lower right hepatic lobe new from prior scan.
My dr wants me to do aggressive chemotherapy. I have been on Ibrance for several years. I have not been able to find any definitions of these PET scan findings. Can someone help explain them please. I would like to do maybe another immunotherapy. thanks so much

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I believe your doctor would like you to take aggressive chemo because there is an increase in liver mets on your PET. Meaning your current treatment or remission has ended. None of us are ever ready for this, even though we know it happens. It is a difficult thing to come to terms with.
“Multiple new diffuse hypermetabolic hepatic metastases“ loosely translates to multiple new liver mets.
Taking aggressive chemo no doubt feels like a step back, but sometimes a detour to more aggressive treatment can shrink things down to allow you to return to less aggressive treatments. I understand wanting another immunotherapy over chemo for sure. Have you discussed this with your doctor?
Has your doctor discussed this PET scan with you?

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@lizzymarie, have you since met with your oncologist to discuss the results of your PET scan? What treatment plan did you decide on together?

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@auntieoakley

I believe your doctor would like you to take aggressive chemo because there is an increase in liver mets on your PET. Meaning your current treatment or remission has ended. None of us are ever ready for this, even though we know it happens. It is a difficult thing to come to terms with.
“Multiple new diffuse hypermetabolic hepatic metastases“ loosely translates to multiple new liver mets.
Taking aggressive chemo no doubt feels like a step back, but sometimes a detour to more aggressive treatment can shrink things down to allow you to return to less aggressive treatments. I understand wanting another immunotherapy over chemo for sure. Have you discussed this with your doctor?
Has your doctor discussed this PET scan with you?

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I am in a similar situation. The metastasis to my bones responded well
To Kisqali and I was NED for 19 months then Mets came back. Switched to Affinitor but reacted badly so switched to Xeloda, PET scan last we shows cancers has progressed so moving now most likely to stronger chemo. Not thrilled but if that’s what will reduce/eliminate it then that’s what I want. Definitely more intrusive than taking oral
Chemo at home but so grateful there are options for me now that the other meds have stopped

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@leeann66

I am in a similar situation. The metastasis to my bones responded well
To Kisqali and I was NED for 19 months then Mets came back. Switched to Affinitor but reacted badly so switched to Xeloda, PET scan last we shows cancers has progressed so moving now most likely to stronger chemo. Not thrilled but if that’s what will reduce/eliminate it then that’s what I want. Definitely more intrusive than taking oral
Chemo at home but so grateful there are options for me now that the other meds have stopped

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I am sorry leeann, this is the hardest time, one that none of us can really prepare for. I know you have been at this for a while now. How is your head space right now? Did your doctor recommend a new treatment plan yet?

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Thanks for your message. Yes this journey started in June 2020 and the new treatment will be the 4th one since then. Doctor is going to think on it and get
Back to me on what she thinks the best plan is. My head is all
Over the place but after an initial cry (that lasted Most of the evening) I’m
Ready to get moving on next steps. I always do better with bad news when I have a plan! Thanks again for reaching out!

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@leeann66

Thanks for your message. Yes this journey started in June 2020 and the new treatment will be the 4th one since then. Doctor is going to think on it and get
Back to me on what she thinks the best plan is. My head is all
Over the place but after an initial cry (that lasted Most of the evening) I’m
Ready to get moving on next steps. I always do better with bad news when I have a plan! Thanks again for reaching out!

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How are you doing, Leeann?

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@colleenyoung

How are you doing, Leeann?

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Hi there, I’m doing ok thanks. Waiting to know what the next treatment will be. Doctor saw my FISH score was 2+, I was diagnosed as HER2 negative but she is considering having me go in to a clinical trial for HER2 positive since I am on the cusp of that along with radiation on my spine. I should know this week the plan,
Stressed waiting and currently not on any treatment! Will keep you posted, thanks for checking in! 😀

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