Nodular sclerosing Hodgkin lymphoma (NSHL): What can I expect?

So, Day 1 after first treatment,
Felt great since 8:30 am, not fatigued like before chemo and didn't even nap..Now I'm getting flush. Seems like this may be common. Does anyone else get this, and what can I do about it?

@melbishop Happy Sunday to you as well. I don’t know where you are, but here in south central PA we are looking at sunshine. Hope that also shines on your Sunday. I will pray for you Thursday, and that you have minimal anxiety as you get treatment #1 under your belt. We all remember that first treatment and appreciate how confidence increases as we realize the benefit from our informed decisions and choices of care. Best wishes for peace going into this week. Your new Connect community looks forward to hearing from and supporting you in any way we can.
Nancy

Yeah, I haven't stated treatment yet. The first will be Thursday. I have Classic Hodgkin's, Nodular Sclerosis, Stage 3/4. Symptoms were the skin conditions but mostly the needles and pins across my back and legs, with chills on 90 degree days w/ goosebumps. Assuming I had COVID 19 I tested twice and went to the ER waiting for the third which where still 10+ days for results. After being cleared my PA found anti-inflammatory markers through the roof and subsequent blood tests eventually pointed towards lymphoma as confirmed by scans with multiple lymph nodes and clusters.
The Dermatologists could only say it was disease related and recommended continued lotions.
They hope that these symptoms may reduce when I start treatment. I believe neuropathy usually starts in hands and feet where I have no issues.
Simple Advil and Tylenol seem to provide some relief from both the chills and pins, but fingers are crossed for Thursday.
My chemo will be ABVD, and I'll let you guys know how it goes.
I assume I will pretty down afterwards, and maybe after every treatment...
Take Care, and Happy Sunday...

@melbishop It seems that you have landed on two of the more common side effects of treatment. Even with my diagnosis different from yours, those two symptoms were there even when my treatments changed. You have gotten some good suggestions for dealing with dry skin issues. For what could possibly be neuropathy I suggest you might have conversation with your doctor and/or nurse team. If that symptom makes sense you might want to check out the Neuropathy discussions here at Mayo Clinic Connect. We have some excellent Mentors who help with the questions and conversations found there. Please let us know what you find that offers some help. And know that there is help.
Peace, Nancy

I also was diagnosed with NHL, follicular
Grade 2-3, after originally diagnosed with CHL, stage 4-B. My port was attached to my upper arm because a neck port could not be installed at the time due to tissue obstruction. So my lymphoma case is unusual and complicated. As previously mentioned, I have responded well to bendamustine and rituxan, a monoclonal antibody.
There is a great deal of effective treatments for lymphoma, along with emerging clinical trials for lymphoma patients.
Best of recovery, health, and personal happiness to you.
Don

I have extremely dry skin from various chemos. I am not familiar with the type of chemotherapy that you are having. There are prescription creams that you can use. I use one called HyloTopic. I also have the pins and need feeling all over my body...especially when I get hot.
I have non Hodgkins Lymphoma.
Has anyone experienced aching and skin sensitivity from the back of their knees to their posterior?

@melbishop - I had those symptoms when I was having Chemo. I used countless bottles of lotion to keep my skin moist, I found that baby lotions, non scented worked best. As far as pins and needles go, yes in my feet I still have some numbness that comes and goes.

So not sure if it was from anxiety or the treatments but none the less, I feel they were a symptom for me.

To a previous post, I am not familiar with the type of Chemo you have been prescribed so cannot relate to it.
Your providers should be able to provide you with a reasonable expectation of what types side effects you may get.

Do you have someone that will be helping you at home with your recovery?

All the best @melbishop

So, right now with the chest port installed and the firm diagnosis of stage 3/4, I want to know if anyone else gets this severe dry skin and pins and needles to the extent that I am and if there is any remedy.

It seems like so much has happened in a very few weeks, and that might make it feel like you don’t truly have a handle on things. These uncharted waters can be very frightening until you have some self confidence about the decisions that you are making. I was wondering who you have with you for the appointments and procedures. What have they done to help you to this point? Is there anything more you need that wasn’t anticipated? Perhaps there are resources you need that we could help you find.
Nancy

I don't know what I'm doing and I don't know what to expect all I know is that I'll get sick and most likely lose my hair. I already got in a fight with the surgical dressing the first night and ripped it off in my sleep, then put on the tegaderm tape dressing directly over the surgical site not knowing what I'm doing. I'll shower for the first time today and see how it goes.