New Lymphedema caused by breast radiation

Posted by newbie475 @newbie475, Jul 2 3:20pm

Hi,
After radiation for my left cancer breast ( following excision surgery), I started experiencing heaviness, tremendous increase in pain, and movement which got worse. I had to complain to oncologist/breast surgeon etc… for a long time, finally after suffering for 3 1/2 months, they took me seriously and wrote me a script for Lymphedema PTMassage.
1) did anyone else have to beg their doctors for solutions?
2) last night was my first night after my first PT, where he taped up my left breast higher, and wrapped compression bandage around my chest… I woke up at 2am, sure I had wet the bed with lots of fluid ( I thought was pee)… question: is this normal?
3) how long will it take to resolve?
4) any suggestions would be greatly appreciated
Thank you so much

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newbie475 | @newbie475 | Jul 12 8:05am

In reply to @ffr "Why are we surprised by these after-effects? Shouldn’t our oncologists be looking for and asking about..." + (show)

@ffr, you’re absolutely right! They never told me about the many side effects I had: burning blisters on my chest from radiation… they gave me Cerave, and then 4 weeks later they told about the anastrazole cream ( that takes it all away within 24 hours) … when I had bad stomach problems … they told me to see the gastro … when it’s a document fact that radiation affects gut motility and stomach issues, and then this last surprise with lymphedema… why can’t doctors provide us with a pamphlet of all possible side effects and their solutions?