New here with DCIS and gene mutation
After a lengthy diagnostic workup, I was diagnosed with DCIS. I had a lumpectomy several weeks ago and had planned to follow this with radiation. Unfortunately, the day after my surgery (there had been an issue with my initial blood sample), I learned that I have a mutation in the CHEK2 gene. I am having a bilateral mastectomy at Mayo in less than two weeks. (The plan was to start reconstruction at that time, but given the current COVID situation, I wonder if the reconstruction should be delayed for various reasons…a whole other topic, however.)
I feel like the bilateral mastectomy is the right decision, but I'm starting to get a bit nervous about the recovery process. My recovery after the lumpectomy went really well, fortunately, but I know this will be different. I'm told that it may be up to three weeks before I can even do any work from home on my computer (is this really true?), that I won't be able to drive for at least a couple of weeks, that I won't be able to do light meal prep for two weeks, etc. Yikes – I'm trying to stock the freezer and prepare as much as I can, but it would be good to hear from those of you who've been down this road who can advise me. Oh, and I'm a stomach sleeper – I'm worried I won't be able to sleep at all after surgery. Thoughts on what to do?
Also, my friends and doctors have encouraged me to contact organizations to get support, but when I reached out to one such program, I got no response. My doctor gave me information about the "Pink Ribbon Mentors," as well as a similar program in the Twin Cities (Firefly Sisterhood), but does anyone know if they work with women in situations like mine? I'm thinking that perhaps the first organization does not, which is why they didn't contact me back. (Or it could be that everyone is just in crisis mode w/ the current COVID situation, which is totally understandable.) I'm afraid to call or email without knowing beforehand that it's a reasonable thing to do – kind of where my head and emotions are these days. Sorry if that sounds crazy.