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New diagnosis of G1NET of stomach. What do I do now?
I was recently diagnosed with a grade one NET of my stomach after an endoscopy for autoimmune gastritis. My local doctor is unfamiliar with these types of tumors. He thinks I should just monitor it. I am uncomfortable with this, especially having had a previous history of thyroid cancer. What should I do next?
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HugInterested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.
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@tiger11073: You have good instincts in not wanting to “just follow” your cancer tumor. Those of us with Neuroendocrine tumor cancer I am sure will agree with my suggestion that you will most benefit from a consultation with a NET Gastro Specialist to guide you in treatment decisions.
You will need to have the medical report that gives this diagnosis as well as copies of all test reports you have had recently as the specific details will afford your NET specialist ability to help you.
NET cancer tumors are different from other cancers and regular medical Oncologists do not have the experience with NETs. Most NET tumors are very slow growing and with prompt treatment you may be able to have the primary surgically removed.
This group at Mayo Connect are here to help you. You will find more groups in researching this disease. You are not alone.
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5 ReactionsThank you so much!
How do I find an NET Gastro Specialist?
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1 Reaction@tiger11073 Hi and welcome to Mayo Connect. Here is a link to find a NET specialist:
https://www.carcinoid.org/for-patients/treatment/find-a-doctor/
Please let me know, if you have any questions.