New and concerned about my wife.

Posted by chaplaindan @chaplaindan, Mar 3 4:16pm

Hello all. I am new here and somewhat awkward as I was once a cancer patient and now my precious wife of 38 blessed years has NEC of terminal ileum, mesenteric lymph nodes, and liver mets. She had surgery December 17 to remove part of the affected GI tract, lymph nodes and as many of the liver tumors as possible. Pathology came back with Grade 2 well differentiated NET Ki67 labeling index, and she is now under the care of a specialized NEC team. She will be starting Octreotide treatments in 2 weeks for 3 months and if no progress she will receive Peptide Receptor Radionuclide Therapy. We also just learned that 4 of the tumors on her Liver have grown by about 1-2 MM and she will need Microwave ablation. They also discovered a 2.1 CM lesion on her pancreas tail that she will be having biopsied in April. Her doctor is certain it is also NEC. These new growths are after having over 50 lesions removed just 2 months prior. Is this unusual for new growth to be noticed so quickly given they are grade 2? Thank you for any help. Very new and I admit, very concerned with this.

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

@hopeful33250

@billbo

I have had three surgeries. The first two were invasive surgeries (resections of the duodenal bulb). I was hospitalized for 5 -6 days each time. When I needed the third surgery, I consulted with a university medical school where they had a doctor who did surgeries of this type using an endoscopic procedure. I was in the hospital for 4 hours total. It was a good decision!

I have not had any involvement with the pancreas or liver at this point.

Jump to this post

Thank you and good luck with everything.

REPLY
Please sign in or register to post a reply.