Neurosurgeon for Glioblastoma resection

Just got a shipment, same as old ones

There are sub specialties in neuro surgery. My tumor was in the right temporal lobe near the 8th cranial nerve. So I used a “skull base” neurosurgeon. He did not damage the nerve so my hearing and balance are fine.

New development. Got a back rash that may be associated with TMZ. Waiting for dermatology consult on how to deal with it. Oncologist recommended Zyrtec and Zantac. But as both dry the skin, looking for better option.

The newer versions are polymer plastics, not ceramic. Ask if you can get the old ones replaced with the new plastic ones, supposed to be available 3-1-25

Best wishes

You can try using a “cooling” pillow. I’ve been using it for 6 months. Hasn’t gone off (the alarm)since!

Now trying to live with optune device. It makes a full nights sleep difficult. I device requires head electrodes that lose conductivity if any sweating.

My tumor was in the right temporal lobe. Fully removed. No neurological deficits. Post op 1 day in iCU and 4 in the neuron rehab unit. Had three weeks fractionated radiation Rx and 3 weeks on TMZ. All very well tolerated.

Hi @kara81, you've received a number of helpful replies. I'd also like to tell you about Mayo Clinic's 48-hour access program. Experts at the Mayo Clinic can help navigate your healthcare journey, answer your questions and guide you through the treatment plan. When you call at any of our 3 campuses, you will be offered an appointment within 48 hours http://mayocl.in/1mtmR63 Be sure to mention the Brain Tumor 48-hour Access program.

Have you and your father made a decision of where to seek care?

check the Mayo Clinic for recommendations. My only thought.

I had 7.5 hrs of surgery at UCLA. No post op pain nor neurological loss. I have no fear of academic quality neurosurgeon