Neuropathy with FOLFOX chemotherapy - Stage Three colon cancer

Mine lasted for about 2 months. I was very fortunate and wasn’t really badly affected by chemo. I am 65 years old and my operation to remove my sigmoid colon was 2/12 years ago. I live in London UK but I am considering looking elsewhere for treatment as other countries have new drugs still awaiting clearance for use in UK. Good luck.

I had to wear gloves to pull anything from our freezer.

It's not just cold - sensitivity to hot things too.

@sueb4bs)
Try magnesium oil for the massage. Like most neuropathy remedies I’m not sure if it’s helping, but I use it on my feet every night. Also taking very low dose Gabepentan and amitriptaline.

Some have to abstain longer or period… I was good after a week, but only made it thru 2 rounds of it due to an allergic reaction.

Recommended by the clinic was to wrap fingers and toes in cold packs during chemo infusion, as this constructs the blood vessels and decreases the amount of Oxaliplatin in those areas. It really works! The chemo nurses already had a great supply ready to use

I was diagnosed with Stage 3 Colon/rectal cancer in 2014. I am now cancer free and no longer
have to see my oncologist.
I had nerve damage from the Oxaliplatin in my hands and feet. The nerve damage in my hands got better but I still have nerve damage in my feet clear up to my ankles.
The chemo was awful...I couldn't drink anything cold and had to have gloves on to take
anything cold out of the refrigerator.
All I wanted was a cold glass of ice water and now that is all I want to drink. The nerve damage has now went on to become Peripheral Neuropathy and foot drop.
It has been a wild ride, but I'm still in the game and God is so good.

Very helpful, thanks. Since I am living away from the U. S. THINGS ARE MORE COMPLEX. OX protocol remains the same around the world, my oncologist told me.

Yes. Almost all pts in my circle of chemo taking ox are warned throughout 7- month tx to stay away from cold ANYTHING!

Thanks for your comments. Pregabalin I have taken with mixed results. I will try massage and essential oils which
sounds soothing and may help. My neuropathy is mainly in legs / knees down and gentle massage can help some. Hands somewhat pins and needles , not as bad as feet, ankles and lower legs.

I had oxaliplatin for stage 3 colon cancer three years ago
I developed feet neuropathy immediately after chemo.
I tried acupuncture ( no help), amitriptyline( no help) and pregabalin (Lyrica)
The pregabalin helps me have better stability and much less shooting pains . I take the generic pregabalin not the brand name Lyrica
Good luck