Connect
Neuropathy with FOLFOX chemotherapy - Stage Three colon cancer
Brief question: NEUROPATHY : Large tumour removed in emergency surgery last of May 2023. Abig surgery. I am doing muy alto muy bajo as it was obstructing the bowel -- Live in Ecuador so everything related to CANCER IS OBSCURE, to put it as succinctly as I can!
Neuropathy conditions can be changeable and also highly individual. Do you experience neuropathy , how long, when and what might I expect? Muchas gracias desde Ecuador..
Like
Helpful
HugInterested in more discussions like this? Go to the Colorectal Cancer Support Group.
Connect
@sueb4bs)
Try magnesium oil for the massage. Like most neuropathy remedies I’m not sure if it’s helping, but I use it on my feet every night. Also taking very low dose Gabepentan and amitriptaline.
Some have to abstain longer or period… I was good after a week, but only made it thru 2 rounds of it due to an allergic reaction.
-
Like -
Helpful -
Hug
1 ReactionRecommended by the clinic was to wrap fingers and toes in cold packs during chemo infusion, as this constructs the blood vessels and decreases the amount of Oxaliplatin in those areas. It really works! The chemo nurses already had a great supply ready to use
-
Like -
Helpful -
Hug
4 ReactionsI was diagnosed with Stage 3 Colon/rectal cancer in 2014. I am now cancer free and no longer
have to see my oncologist.
I had nerve damage from the Oxaliplatin in my hands and feet. The nerve damage in my hands got better but I still have nerve damage in my feet clear up to my ankles.
The chemo was awful...I couldn't drink anything cold and had to have gloves on to take
anything cold out of the refrigerator.
All I wanted was a cold glass of ice water and now that is all I want to drink. The nerve damage has now went on to become Peripheral Neuropathy and foot drop.
It has been a wild ride, but I'm still in the game and God is so good.
-
Like -
Helpful -
Hug
1 ReactionVery helpful, thanks. Since I am living away from the U. S. THINGS ARE MORE COMPLEX. OX protocol remains the same around the world, my oncologist told me.
-
Like -
Helpful -
Hug
2 ReactionsYes. Almost all pts in my circle of chemo taking ox are warned throughout 7- month tx to stay away from cold ANYTHING!
-
Like -
Helpful -
Hug
1 ReactionThanks for your comments. Pregabalin I have taken with mixed results. I will try massage and essential oils which
sounds soothing and may help. My neuropathy is mainly in legs / knees down and gentle massage can help some. Hands somewhat pins and needles , not as bad as feet, ankles and lower legs.
I had oxaliplatin for stage 3 colon cancer three years ago
I developed feet neuropathy immediately after chemo.
I tried acupuncture ( no help), amitriptyline( no help) and pregabalin (Lyrica)
The pregabalin helps me have better stability and much less shooting pains . I take the generic pregabalin not the brand name Lyrica
Good luck
-
Like -
Helpful -
Hug
2 ReactionsWife has stage 4 colon cancer and yes was told the same thing. May not affect you but it did her. Even water had to be room temp and the more cycles she had the worse it got/longer it lasted. We opted to not use OX in our second set of 6 so far due to the side effects.
Has the doctor told anyone to wait at least five days after OX before drinking cold beverages or to also make sure you wear gloves if reaching in refrigerator? Avoid cold things..