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timmckinney
@timmckinney

Posts: 18
Joined: Mar 07, 2017

Neuropathy Pain-Medical Community’s Reluctance To Investigate

Posted by @timmckinney, Wed, May 2 10:38am

Been dealing with idiopathic peripheral neuropathy for the past 6 years and after the first year with my GP and an extensive visit to a major university hospital, nobody seems inclined to make any further attempts to locate a possible cause or positive pain management program. Is this illness a finality that is a just deal with it situation for the rest of a patents life? I now see why depression and desperation are words used quite often by people with this affliction.

REPLY

Have they run any tests? My Neurologist ran a number of tests including an MRI, but nothing has shown up. I'm one of the fortunate ones and mine has seemed to stop advancing. I have taken Gabapentin, but am slowly coming off now. The stinging I had in the beginning has stopped. It seems to be only from my knees down and in my hands. Hope you find help.

@liz223

Have they run any tests? My Neurologist ran a number of tests including an MRI, but nothing has shown up. I'm one of the fortunate ones and mine has seemed to stop advancing. I have taken Gabapentin, but am slowly coming off now. The stinging I had in the beginning has stopped. It seems to be only from my knees down and in my hands. Hope you find help.

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Glad to hear that it's out of your arms,hands the way I got rid of b me was sleeping with no pillow

@liz223

Have they run any tests? My Neurologist ran a number of tests including an MRI, but nothing has shown up. I'm one of the fortunate ones and mine has seemed to stop advancing. I have taken Gabapentin, but am slowly coming off now. The stinging I had in the beginning has stopped. It seems to be only from my knees down and in my hands. Hope you find help.

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Blood work, nerve conduction study etc. Found nothing. Gabapentin seems almost worthless. Dumbs it down but not a lot.

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