Neuropathy pain in my left foot and lower left legs

Posted by robertlclark @robertlclark, May 24, 2016

Hello everyone. I have been suffering from pain in my left foot and lower left leg pain since 2008. I was diagnosed with lumbar spinal stenosis in 2010 and had a lumbar laminectomy with little relief. The pain persisted and in 2015 I had a second lumbar laminectomy. Is anyone suffering with this type of moderate pain?

Liked by grammydove

@berit

Hello, Folks.
I’ve read through the discussion and frankly i don’t know whether I’m happy to have found some fellow sufferers or not. I have neuropathy on both feet – the burning, tingling kind – if I stand or walk for longer than 15 minutes. It was dxed as “slight” but if what I feel is “slight’ I wouldn’t want to know what moderate or severe feel like. I have had meds and shots and nothing has worked particularly well. Not being able to walk without pain has put a TREMENDOUS cramp in my lifestyle, which I am sure you folks would know all about. It sounds like nothing has worked particularly well for anyone, which is disheartening. I also have flat feet and arthritis in both feet and ankles which just compounds the problem. I saw a podiatrist last week who was very enthusiastic about braces. I’ll be evaluated for those next week. I’m beyond caring if I look like a little old crippled lady . . . i just want to be able to walk around the block again – without pain, or at least pain at a level I can tolerate.

Wish me luck. I’m certainly hoping that at least some of you are feeling better than you were when you last posted.

Jump to this post

I feel you. Between the numbness and severe scoliosis I feel like a captive in my house. This is not how I want to live. Have found certain exercises help strengthen muscles which will provide additional support. All I want is to be able to walk and sit. I force myself thru the day which is not an easy task. Not ready to give in to it.

I’m feeling pessimistic–it seems that with all of you out there suffering from this neuropathy, if there were a sure-fire remedy one of you would have found it. I too used to be really active–walking, hiking, ice skating. I’d hoped to spend my retirement traveling and keeping up with my grandchildren, so this is not easy to accept. I’m thinking of trying to find a psychotherapist who can help me accept my life as it is, not as I would like it to be.

Liked by blindeyepug

@berit

Hello, Folks.
I’ve read through the discussion and frankly i don’t know whether I’m happy to have found some fellow sufferers or not. I have neuropathy on both feet – the burning, tingling kind – if I stand or walk for longer than 15 minutes. It was dxed as “slight” but if what I feel is “slight’ I wouldn’t want to know what moderate or severe feel like. I have had meds and shots and nothing has worked particularly well. Not being able to walk without pain has put a TREMENDOUS cramp in my lifestyle, which I am sure you folks would know all about. It sounds like nothing has worked particularly well for anyone, which is disheartening. I also have flat feet and arthritis in both feet and ankles which just compounds the problem. I saw a podiatrist last week who was very enthusiastic about braces. I’ll be evaluated for those next week. I’m beyond caring if I look like a little old crippled lady . . . i just want to be able to walk around the block again – without pain, or at least pain at a level I can tolerate.

Wish me luck. I’m certainly hoping that at least some of you are feeling better than you were when you last posted.

Jump to this post

My mom is 95 years old and was feeling exactly the same. I persuaded her to get a scooter. She said it’s like being let out of jail. She can zip around the neighborhood, pick up her own mail (where she lives they have outdoor mailboxes), and go to the library. They are pricey (around $1,000) but worth saving for. Also, hers can be disassembled and put in the trunk of a car which makes it easy to take her places she wouldn’t otherwise be able to go. It’s much smaller than the ones in Wal-mart and Target so it is much more mobile and easy to store. The companies that sell them will bring them to your house to try out, and also rent them to you so you can see how much you like it and if you would use it.

Fortunately for me I live in a golf cart community so I can get to pretty much any kind of store by golf cart. Or just tool around and see what’s going on hither and yon. It’s like bumper cars for adults. GREAT fun! I’m lucky I moved here while I could still get around.

@grandmacheryl

I’m feeling pessimistic–it seems that with all of you out there suffering from this neuropathy, if there were a sure-fire remedy one of you would have found it. I too used to be really active–walking, hiking, ice skating. I’d hoped to spend my retirement traveling and keeping up with my grandchildren, so this is not easy to accept. I’m thinking of trying to find a psychotherapist who can help me accept my life as it is, not as I would like it to be.

Jump to this post

I get the pessimistic feeling – one can’t help but feel that way as more and more things get taken away. i’ve lost the walking, hiking, roller blading, and ice skating too. HOWEVER, it occurred to me that I could start looking into activities that do not require weight-bearing.
Hello, KAYAKING! Boy has this turned out to be fun! I signed up for a lesson and within 30 seconds I knew this was for me. I’ve discovered that I feel MUCH better if, as I lose something, I can replace it with something. I do water aerobics, while not my favorite thing in the world, lets me move to music without hurting my feet. Figuring out how to garden while sitting (moveable stool w/ rollers and planting in pots on the patio) lets me continue to do something I love but without pain.

A lot of creative thinking is involved here. But if you think about it, there are probably things you have thought about trying out during your lifetime that you never got around to trying – learning another language, writing poetry, cookbook, newsletter, mystery or novel, weaving baskets, playing the piano or other instrument, learning to id birds, viewing every Academy Award film since 1923 . . . once you start thinking about it the ideas will flow.

Or, how about going back to school? What have you always wanted to be that you never got to be? And if someone says you will be 50, or 60, or 70 when you finish, point out that you will be 50, 60, or 70 anyway. If you go back to school you can be 50, 60, or 70 with a DEGREE.
Nothing wrong w/ seeing a therapist. But you can also replace lost activities with new ones, or do both.

@grandmacheryl

I’m feeling pessimistic–it seems that with all of you out there suffering from this neuropathy, if there were a sure-fire remedy one of you would have found it. I too used to be really active–walking, hiking, ice skating. I’d hoped to spend my retirement traveling and keeping up with my grandchildren, so this is not easy to accept. I’m thinking of trying to find a psychotherapist who can help me accept my life as it is, not as I would like it to be.

Jump to this post

What a wonderful, upbeat reply! I felt better just reading it!! Your
creative ideas are much better than feeling sorry for yourself.

I weaned off morphine sulfate contin, to see if Cymbalta was doing anything on its own. The burning pain, unfortunately, became intolerable, so I started back on morphine sulfate, up to 15mg tid. Whenever I raise the dosage, the pain gets much better for a week or two, then I increase it again, and so on, until I get to the dosage that maintains a tolerable level of pain. I put Lidocaine cream on my feet at bedtime, so I can get to sleep. I sometimes put it on at other times to reduce the pain. Problem is, it’s incredibly expensive, so I use it sparingly, and only when I need it. It numbs the area you apply it to. I’ve tried every medication available for peripheral neuropathy, and none has helped. I’m going to talk with a doctor about spinal cord stimulator. Yesterday, the pain specialist told me that medical Marijuana could help. I’ve tried it 3 times now, and it really does reduce the pain, for 4 or 5 hours. Since I take morphine sulfate and at bedtime Klonopin, I shouldn’t take or need a very high dose of Marijuana. Now I have to find a doctor who will give me a green card. The pain doctor said it can take quite awhile to get it.

One other thing the pain doctor recommended was the pain psychologist, which I’m going to look into. I hope each of you are helped in some way through your interaction with the group. I have, and one way has been to hear that others are having similar symptoms to mine. I don’t feel so alone and like a freak.

@edieguinn

Yes. I’m trying walking in a pool and also a stretching class. Water therapy helps to a point. Tried meds and they didn’t work. Numbness makes me feel like I’m going to fall. Shop in stores that have carts only

Jump to this post

I could have written the exact same things you wrote. Life does bring us surprises from time to time.

@edieguinn

I tried that medication but it did little for pain and made me foggy

Jump to this post

Sadly, it didn’t help me either. My legs swelled up so badly I couldn’t bend my knees. I understand, however, that for those people who can take it it works well.

Please login or register to post a reply.