Neuropathy or CIPD???

Posted by oliver8112000 @oliver8112000, Aug 30 9:32pm

I had Chemo in 1981 for AML Leukemia, no neuropathy. Then again 2007-2008 for BC. Last tx was 2-5-2008. No neuropathy. Out of the blue in March 2011 it started in my right toes. Dr. My Oncologist wrote it of from Chemo. Come Summer 2023 Cape May, Stone Harbor, I had to hold onto my sister’s and niece to walk and my fingers felt like needles. Neurologist did EMG. Next step was Spinal Tap to determine CIPD. He wasn’t ready to go that route. Just redid EMG, abnormal again, now next up scheduling the Spinal Tap. Has anyone on this board had this Treatment? I do not have diabetes either.

Interested in more discussions like this? Go to the Neuropathy Support Group.

jedge54 | @jedge54 | Sep 12 9:12am

In reply to @oliver8112000 "🙏🏻 you are not on placebo." + (show)

Not sure why you made that comment. See attachment

jedge54 | @jedge54 | Sep 12 9:16am

In reply to @oliver8112000 "🙏🏻 you are not on placebo." + (show)

Not sure why you made that comment

oliver8112000 | @oliver8112000 | Sep 12 4:09pm

In reply to @jedge54 "Not sure why you made that comment" + (show)

Hello. I thought you said you did not know if you were on the real drug or a placebo. So I thought, maybe I was wrong making the comment, that you would want the real drug not the placebo. So I posted, I pray you are not on the placebo. Does that make sense? Or maybe it’s me. I’m just in a state of confusion. I just found out that my back stabbing rib pain upper and lower back can be caused by CIDP. I am sorry for confusion. ☹️