How have you received enough physical exercise while dealing with neuropathy?? Do you walk in spite of the condition; tiptoe to get around; particular exercise program, etc.?
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Oh yes, now I remember, I'm on a waiting list to get on the waiting list to get the shot(s). None of my pharmacies in Delaware or Virginia know when they will get it in. I wonder why the company who makes it is so slow about producing it. Pharmaceutical companies spend a lot of money on research and development, they usually want to make their money back asap. Peggy
Hey there, @southwind. I am checking on you and your walking program now that everything is on the table regarding what the real subject is here. How is your health right now? Any new findings? Are you feeling less pain? I do like your positive endorphins solution. So hoping you are moving forward unconditionally. Be safe and protected. Chris
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I have a serious case of CIDP, with major nerve damage in my legs, so just stumbling around the house with a cane or walker is difficult. (Away from the house, I have to use a wheelchair.) Unfortunately, I also have serious back problems and constant pain. I need exercise for both conditions, but pain makes it difficult. I do stretches and other exercises for my back, but I can’t ride an exercise bike and do any exercises that require being on my feet without support. I can’t get down on a floor mat because I wouldn’t be able to get up again, so I do the lying-down exercises on the bed. I have some atrophy in my legs, which two neurologists have told me will happen with CIDP regardless of whether you walk and exercise. Next week I’m having a peripheral nerve stimulator put in, and I hope it will control my pain well enough to let me exercise more. A friend who is a yoga instructor has given me guidance to moves that won’t over-tax my depleted muscles or cause injury.
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So, in addition to IVIG, you also partake in additional strength building and a self discipline lifestyle? Amazing you are, my friend! Keep your positive spirit…it must be very difficult some days.
Rachel
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Because of the balance problem I have as a result of my peripheral neuropathy I have difficulty walking as much as I used to. I was wondering if you have any suggestions for shoes.I’m currently buying new balance shoes but would be happy to spend some money on custom made shoes. Is this something I should go to a podiatrist for. Any help greatly appreciated
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@7510cahill, @jmhday Good afternoon. Regarding shoes, New Balance had been by choice for hiking/walking shoes for 20 years. Now I look for Mephisto's for best fit and comfort when I have to walk a lot indoors…grocery shopping, exhibitions, etc. If you have high arches and a wide instep…..Mephistos are in a class with Munro which is American made. Good searching. Socks are important too. Be safe and protected. Chris
@sparshall Neuropathy is horrible I have it but not in feet yet Chair exercise is great for us who have it A friend of mine loves the stretching and other foot exercise .She said she feels alot better after exercising and stretching the feet,toes. If you can find a chair program I think you would benefit you ,
and 2other people have said it helps them
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@darlingtondoll I know what you mean big bulky shoes bother my feet my ankles are my problem they hurt with those kind of shoes and at night I have to rub them with wintergreen alcohol to settle them down.
My favorite shoes are Skechers with the spongy rubber soles and foam foot beds. They pad my feet and provide rebound when my feet hit the ground. When my legs and feet are painful with jangled nerves I can rub any kind of lotion or cream onto them and they calm down … for awhile … not long, but it breaks the pain cycle for awhile. Peggy
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@margaretob Hi Arnica is a homeopathic cream for pain from the plant NOT drugs and it does help I use it all the time like all rubs they last for awhile . This has no chemicals in it as drugs do so I am into naturel products this is one . For me Ive done homeopathic for years and they help I also had a by pass surgery in 1996 and am still very active . Hope you give it a try any drug store has it.
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@lisalucier
Hi, @pfbacon – this Mayo Clinic article has some useful information on Shingrix https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-q-and-a-new-shingles-vaccine-recommended-for-most-adults-over-age-50/
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