Neuropathy during Evenity treatments

I also am having neuropathy in my feet since my first dose of Evenity. It is especially bad in the morning when I get out of bed. Of course, doctors will probably dismiss this as not related to taking Evenity, but we, as patients, know better.

Thank you for sharing your experience! I hope my next injections don't add new symptoms but seeing an unfortunate pattern here now.

I ended up going to the pediatrist because my toes would go dark and go numb. My fingers also go numb or feel prickly. They sent me to get some testing done and it all came back good, good pulse , no damage. They said they can't explain what's happening but it could be the medication. My biggest fear as a diabetic is losing my feet so I got really concern when I would push on my toes and they would go white complete for a few moments and blood came back later. Only thing I was advised by the dermatologist and pediatrist to keep my fingers and toes warm. Wear warm socks and gloves to keep blood flowing. I'm glad my test results came back good but it's annoying all these side effects no one really knows about because "it's not on the list of side effects" .

Evenity is a relatively new drug, and not all of its side effects seem to be known. More than few doctors seem dismissive when women complain about symptoms that did not appear during the testing phase of this drug or symptoms that appeared in only a small segment of the testing population. Still, if you can get through taking the injections for a year or at least six months, it is worth the benefit of having stronger bones. Keep going as long as you can, but do not be afraid to quit if your symptoms worsen or become unbearable.

I experienced a finger crawling sensation on the left side of my forehead and less frequently on the left top of my head after my first dose of Evenity that became more prominent after my second dose. I had to stop Evenity after the second dose due to several bad side effects.

@nliebrecht
Great advice. I am thinking of going just 6 months, then will consider lab results in making a final decision. Thanks for your insight!

@kay15
This was a really scary situation for you and glad that your tests showed no major damage. It's sad, though, that warm socks and gloves are the only suggestion.