Neuropathy and other strange symptoms

Posted by jola65 @jola65, Sat, Jun 15 12:33pm

I’m going to mayo in a few weeks, but I thoughtI’m I would write about my symptoms here to see if anyone has experienced something similar. I have burning and tingling in my arms and legs. It feels like there is an electric shock running through my body at all times. This has been going on for almost 10 years now, and when it began I also developed vertigo and I’m unsure if that has any relation. I have various food sensitivities, trouble sleeping, brain fog, constipation, and tinnitus. These symptoms all started together, and I’m not sure if they’re all related but it seems as though they are. The pain is nonstop, although it has lessened and worsened on and off over time. If anyone has any similar symptoms or any advice please advise!! Thank you for reading.

Liked by Leonard, lovee

@vradifegari

Vradi @vradifegari — I am skeptical of the claims but I've been burned so many times on miracle cures by wasting money on something that didn't work that anytime I see ads like this one I'm very doubtful. When I'm in doubt I try to evaluate using a few references I've found useful.

Quazar's guidance about avoiding scams and snake oil cures
https://connect.mayoclinic.org/discussion/how-to-avoid-quacks-and-snake-oil-treatments/

FDA's Health Fraud Page
https://www.fda.gov/ForConsumers/ProtectYourself/HealthFraud/ucm539101.htm

NIH's National Center for Complementary and Integrative Health (NCCIH) which offers guidance about integrative health and how to evaluate it.
https://nccih.nih.gov/health/decisions

The first thing that caught my eye on the label of the product were the four check marks to what it helps. At the end of each checkmark is an asterisk(*) which usually is used to reference a disclaimer but I could not find one. In the end it might boil down to cost. If it's not expensive and I'm really hurting that may convince me to try it. Maybe other members have had some experience they can share with you on the product.

Liked by Leonard

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I don´t know that particular one, but I do take Alpha Lipoic Acid, recommended by Dr. Antonio Aldrete, when diagnosed with Arachnoiditis. Also by a neurologist who works at a specific neurologic clinic in Sarasota, Florida. He vouched for it being of use in terms of neurology. I have no idea what the other ingredients are as I couldn´t read the label too well. Alpha Lipoic Acid is for sale in health food stores and even drugstores. For whatever it´s worth…..Once a legitimate MD recommends a supplement I tend to trust that it couldn´t hurt.

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Oh, yes, it´s an antioxidant and also used in problems related to nerve pain….just looked it up…..

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@joanmahon

I don´t know that particular one, but I do take Alpha Lipoic Acid, recommended by Dr. Antonio Aldrete, when diagnosed with Arachnoiditis. Also by a neurologist who works at a specific neurologic clinic in Sarasota, Florida. He vouched for it being of use in terms of neurology. I have no idea what the other ingredients are as I couldn´t read the label too well. Alpha Lipoic Acid is for sale in health food stores and even drugstores. For whatever it´s worth…..Once a legitimate MD recommends a supplement I tend to trust that it couldn´t hurt.

Jump to this post

I take a lot of the supplements listed in product but I know the quality of the ones I take and I'm not sure about the ones and the amount of each one listed in the product. ALA as listed on the bottle probably contains at least 50% of the synthetic version which I think inhibits any kind of value of the natural ALA. I take 100% R-ALA – 1200 mg daily along with my other supplements. Here's some references for ALA.

Different Forms of Lipoic Acid: What You Need to Know
https://geronova.com/consumers/different-forms-of-lipoic-acid/

Alpha Lipoic Acid
http://lpi.oregonstate.edu/mic/dietary-factors/lipoic-acid

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@vradifegari

@vradifegari
Hi there,
Just my uneducated opinion but but I save my time and money. I get emails every day on Neuropathy, Cancer and Diabetes cures. Don’t you think that if they worked it would be recognized in the mail stream medical community and plastered all over the news. I think the sellers of these products are lacking the most important ingredients Integrity and conscious.
The only thing that ever helped me was the pain medication Fentanyl and that didn’t help much. I’ve taken all the seizure meds for Neuropathy from low to maximum doses and nothing. That’s not to say they don’t work in some people. Also I believe a lot of people may get relief from the the Placebo effects of this junk, in my opinion. My thought is these people may only have very mild symptomatology that isn’t that distressing in the first place. Maybe I’m overly skeptical.
I hope you find relief.
Jake

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have you had MRI with contrast if so Google gadlinium poising

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Hello. Nice Sunday:
Do any of you know if Garcinia Gambogia used for lost weight can be a cause of Neuropathic pain?
I ask because on Febrary of 2012 I took a high dose and the label sayd "it burs liver fat". By June It started strong pains like crystal burning in my legs and I went on fisiotherapy which I stopped cause put me worst. Then on September was the Dengue fver and in 2015 my accident on stair. But I think garcinia gambogia the first thing in damage my neves.
I am searching on google, but pain does not allow me to be much time. If you have any notices about this. It will be very helpful.

Love for everyone,
Vradi

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@jakedduck1

@vradifegari
Hi there,
Just my uneducated opinion but but I save my time and money. I get emails every day on Neuropathy, Cancer and Diabetes cures. Don’t you think that if they worked it would be recognized in the mail stream medical community and plastered all over the news. I think the sellers of these products are lacking the most important ingredients Integrity and conscious.
The only thing that ever helped me was the pain medication Fentanyl and that didn’t help much. I’ve taken all the seizure meds for Neuropathy from low to maximum doses and nothing. That’s not to say they don’t work in some people. Also I believe a lot of people may get relief from the the Placebo effects of this junk, in my opinion. My thought is these people may only have very mild symptomatology that isn’t that distressing in the first place. Maybe I’m overly skeptical.
I hope you find relief.
Jake

Jump to this post

Jake as with many of us who suffer from disease and other maladies, you are the Best Doctor. We need to listen in closely what our bodies are trying to tell us! With the electronic age we are so lucky to have information at our finger tips!
There is a wealth of information out there! Some of it good and some that is bad! By researching and reading it will elavate your understanding of the good and the bad.
Try many different sources, not just one!
This past year with my disease fight I have learned to not take a medical person at their word. How would they react is they had your symptoms?
Know what meds help you! Try things that may have helped others. If you try them, know how you feel! If you have feeling of depreession or other things that are not normal for you, talk to your doctor, but more that that understand what your body is saying to you.
Sundance(RB)

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@vradifegari

Hello. Nice Sunday:
Do any of you know if Garcinia Gambogia used for lost weight can be a cause of Neuropathic pain?
I ask because on Febrary of 2012 I took a high dose and the label sayd "it burs liver fat". By June It started strong pains like crystal burning in my legs and I went on fisiotherapy which I stopped cause put me worst. Then on September was the Dengue fver and in 2015 my accident on stair. But I think garcinia gambogia the first thing in damage my neves.
I am searching on google, but pain does not allow me to be much time. If you have any notices about this. It will be very helpful.

Love for everyone,
Vradi

Jump to this post

Hi Vradi @vradifegari, I haven't found any references to side effects of Garcina Gambogia that might cause neuropathy pain but that may or may not be true. Here are a couple of warnings I found that may help.

Dangerous dietary supplements: Garcinia cambogia-associated hepatic failure requiring transplantation
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5143754/

Troubling New Potential Garcinia Cambogia Side Effect
https://www.consumerreports.org/vitamins-supplements/troubling-new-garcinia-cambogia-side-effect/

RXList.com – What Are Side Effects Associated with Using Garcinia?
https://www.rxlist.com/consumer_garcinia/drugs-condition.htm#what_are_side_effects_of_garcinia

Liked by Vradi Fegariou

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In reply to @jakedduck1
Hello: Thank you for give me your opinion which is also important and not uneducated but your right. You wrote: "I get emails every day on Neuropathy, Cancer and Diabetes cures". Would you send some of those emails on Neuropathy cures? If is not an intrusive request. Private message me for my email.
What is your level of pain in scale of 1 to 10?
Good night Jake

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Those of you who experiment a pain level on 6, that is mine in a crysis (1 to 10 scale). What treatment algorithm have you ever use that stop pain?
Thank you

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Hi @vradifegari you may have noticed I removed your email from your post. We recommend not sharing personal contact information in a public online forum. We don't want you to get unwanted spam as a result. Instead we recommend using the private message function. However, I would like to point out that by sharing on the forum, your messages benefit many and we can all learn from each other.

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Good morning:
I hope the day started nicely for you all.

I found this in a German website: https://www.neuro.med.tu-muenchen.de/dfns/uns/e_portrait.html#NP

The current treatment algorithms of neuropathic pain take into consideration (1) to cure the original cause of the pain, (2) to achieve complete or at least partial analgesia by pharmacological and non-pharmacological strategies and (3) to improve pain coping by psychological treatment strategies. Traditionally pharmacological studies have been directed towards a specific disease entity rather than specific signs or symptoms. Management of patients based on their disease state, however, is probably not the most effective way to address specific neuropathic pain signs and symptoms.
Various different pathophysiological mechanisms can coexist in one disease entity in various combinations and may also be present in one single individual. Thus, drug regimens should be targeted towards the underlying mechanism responsible for the observed and reported findings. For example, patients with allodynia would be expected to respond to similar treatment, although the pathogenesis giving rise to it may reflect a multitude of diverse disorders such as diabetic neuropathy, post-herpetic neuralgia, or nerve entrapment. This approach is appropriate since precipitating changes in the nervous system would be expected to be similar for those suffering from allodynia and therefore therapy should likewise be comparable.

Thus it is an important step to establish a future mechanism-based drug therapy of neuropathic pain. If it would be possible to characterize the concert of the distinct mechanisms that operate in one individual patient, an optimal polypharmacotherapy that addresses the specific combination of mechanisms may be established for each patient. This concept is realized in the development of the Neuropathic Pain Data Bank of the DFNS: it defines neuropathic pain symptoms – independent of the etiology – and will then proceed to treat these symptoms with combinations of various substance classes.

My questions: Does any person have tried this "non-pharmacological strategies and (3) to improve pain coping by psychological treatment strategies"?

Have a good day.

Liked by johnhans

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In reply to Ethan McKonkey @ethanmcconkey
Posted by Ethan McConkey, Moderator @ethanmcconkey, 12 hours ago
I am sorry. I understand. I have started to post with most reagularity because I am feeling better this days and I am reading with calm your links and post in order to evaluate which are -under my limited reality- what can I really do. I am obligated to get better beause I am only child. I am 33 and with my actual treatments I am not able yeat to clean my own home and my liver started to protest. I can cook easy food, and another easy home activities. But I have to function. Go back to work. So I apologize if it seams I post and post, but I am, trying to fix me.
If in my researching I find good info I will post if you are agree.
My best wishes and relief.
Cynthia

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