Neuropathy

Yeah, I know. Sleep is at best 4hrs, and that's with a handfull of asssorted pills and supplements. Lyrica 200mg, muscle relaxer X2, Melatonin, Valerian Root, GABA. I can maybe nod off, but it likes to wake you up just to mess with you. For me it likes to amp up after 6pm and gradually increase, and giving me random jolts especially after 8pm. People and Dr's tell me "it's because you've been on your feet all day". To which I reply.. "I can't walk or even STAND on my left foot, and I haven't for a full year". They just look at me. Idiots.. I thought it could be food related and maybe it acts up after eatting dinner or a big meal, but I am not diabetic and eat healthy. Occasionaly it acts up during the day, but it is always worse at night. Since I am not working because of all of this, I try and take naps during the day if I can. Good luck to you, hopefully we can all sleep tonight.

@insanepain My neuropathy is autoimmune. I have lupus, sojourns, mixed connective tissue disease. That’s not including all the different types of neuropathy that I have. I am allergic to gabapentin.
I have over 50 different drug allergies because of the lupus.

I was sleeping 0 to 3 hours consistently for over a year before I was diagnosed with sensorimotor polyneuropathy.
Could never fall asleep. Now I fall asleep from the mental stress but if I awake I wont go back to sleep like right now…it is 4am. Ive been up since 1 am. I noticed every day at around 5 or 6 neuropathy starts to get worse and continues to.

But Gabapentin was helping me with sleep quite well when I first got neuropathy but I cant afford them at the moment or perhaps ever again. Id take two pills before bed.
Funnily enough I would do anything to go back to the days when I just had severe insomnia. Wish they would have presxribed Gabapentin back then as I was still working and had insurance (im not in the States) but now rendered useless with both neuropathy and insomnia. I’m also positive my days of sleeping 0 to 3 hours contributed to developing neuropathy and diabetes.

@artemis1886 Damn, sorry to hear all of that. I hope and pray you find some relief and of course some sleep.

Hello,
I’m so sorry for what you’re going through and I can definitely understand it since I am in the same boat.
I have a maybe too simplistic theory which I am yet to test and don’t know how. I feel that after a long day the nerves start to get more tired. And we go to bed and lay down, knowingly or not, we are putting body weight pressure on certain nerves which I feel may increase the intensity of what we’re already feeling after a long day. Regardless of which way we sleep, we put pressure on the nerves.
Again, this is a very simplistic untested theory. However, for some reason I do feel this is what is really going on. I’m saying this because when I feel intense nerve pain and switch position, I feel some relief there. But then the next position starts putting pressure on other nerves, hence the cycle.
Wishing you and all of us who are going through this to hopefully find a way to better sleep.
Take care and have a serene day,
gus

I have to admit that I’m taking Lunesta 2 mg for sleep

@gus0557 That is a theory. My only problem is I can sleep during the day without pain. My husband thinks it has to do with the gravitational pull from the moon. Constantly, changes it affects the ocean and the barometric pressure.

Agreed. I have noticed a spike in my neuropathy when the barometric pressure rises. I will have to keep track of the moon cycles and see how bad it is the next full moon, which is next Saturday (Sept 26), and the days leading up to it.

@artemis1886
Thank you for your reply and your husband’s explanation is also a theory. Besides, we are not oceans and we’re not always encouraging big changes in barometric pressure. Moreover, remember that after a long day, the entire body is more tired and with it the nerves.
Anyway, all we have are untested theories that we sometimes use to try to make some sense of things.
Best wishes and take care,
gus

The barometric pressure plays a big role. My neuromuscular neurologist explained it to me. Just like if you pay attention to the weather and your body you can tell it’s going to rain two days ahead of time. My neuromuscular neurologist had me keep track of the barometric pressures for two months and how I was feeling. So yes they know about the increase of pain when the barometric pressure changes. It’s getting them to talk about it. It’s just like pulling teeth to get to the bottom. I told them I was sick and tired of these games they play. I wanted the progression of neuropathy upfront. They tell you that you can’t die from it and in reality you can. It moves into your organs and affects them. Yet you ask them about motor neuropathy and that is controlled by the brain. Everything you read talks about the blood brain barrier yet neuropathy can affect the brain.
Even the research neurologist in Boston talked to be about the barometric pressure. It has been proven.
https://acaciahealth.ca/blog/peripheral-neuropathy-wintertime-and-me/
https://www.solace.health/articles/weather-sensitivity-and-neuropathy
https://www.atlantamedicalclinic.com/why-is-neuropathy-pain-worse-in-cooler-climates/