Mayo Clinic Connect
I have loss of feeling in my feet and tingling sensation. My doctor prescribed gabapentin. I read the side effects and decided not to take this med.Anyone have any experience with gabapentin?
I received a call from the mayo clinic yesterday and confirmed a video appointment that will take place in two weeks. Based on that, I will be put at the top of the list for Neurology. I actually cried happy tears at after getting off the phone.I pray that mayo has the answers that I’ve been searching for.
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Hi Laura @laurask – that is great news! It is something to be excited about and I'm hoping you are able to find some answers and help. You may want to read through the following new discussion since you have an upcoming video appointment. It might help to put you at ease and give you some tips.
Telemedicine: How to make the most of a virtual doctor visit – https://connect.mayoclinic.org/discussion/covid-19-telemedicine-its-a-brave-new-world/
I hope you can come back and let us know how the video appointment went.
@laurask Incredible news! So happy for you Laura.
Liked by John, Volunteer Mentor
Liked by John, Volunteer Mentor, rwinney
Fantastic, @laurask. I second @rwinney and @johnbishop's joy at your getting an appointment for a video-consult. You'll notice that I moved your message to this discussion where you've been sharing your journey with other members so they can also hear the news.
Are you making notes and a list of questions to prepare for the appointment?
Liked by John, Volunteer Mentor, Chris Trout, Volunteer Mentor, rwinney
@jmhd, Hi Jim, I couldn't help but notice your statement about pain not being essential. Actually, in recognition of how it helps, my understanding is that medical marijuana is considered essential during this event. The dispensaries are suggesting that in-home delivery is safer than curbside. I will tag @jeffrapp, @dckuke in case they need to know.
May you have comfort and ease.
@artscaping I'm looking for a good CBD non-THC since it's illegal in Texas, oil and lotion. I can't smoke anything. My lungs say no to smoking. Since they found some nodules when they were x-raying for my broken ribs and internal injuries after an accident in December, I'm fine with that. I grew up with parents that smoked multiple packs/day. My husband smokes 3 packs/day. Growing up in the 60s etc., smoking was common. I'm praying that the nodules aren't growing. I am supposed to have a follow-up x-ray in June.
To address the Gabapentin question posted, I have Peripheral Neuropathy Syndrome in my feet up through my legs; also in my hands; Chronic Pain from lumbar replacement and stenosis, plus cervical stenosis. I'm on Gabapentin 300 my/ 3x/day plus Celebrix. I tried Savella and Cymbalta and had bad reactions to both of those meds. Therefore, my pain Dr and I agreed that Lyrica was not an option for me. I am a very small person and have a low drug tolerance. I've had terrible reactions to many drugs so we have to be vigilant. So far, Gabapentin and Celebrix are not causing anything unusual. I have migraines so memory loss was already an issue from Topamax before I started taking these meds. I'm also on Tramadol (3-4/day) and a muscle relaxant that I only take at bedtime since it knocks me out. Nights can be agony with my neuralgia in my feet and legs. And my arms go numb no matter what because of my cervical stenosis. Lucky to get a solid 3-4 his of sleep.
Liked by Chris Trout, Volunteer Mentor
While I cannot recommend medicines that you should take, I have used each of those drugs. Gabapentin had almost no effect in reducing pain. Cymbalta caused serious memory issues—I could not remember what I did the night before… I had just about given up, when my podiatrist had me try Lyrica. It is very effective when used with large dose of Tramadol. If I am even an hour late taking it, the pain is intense. The only side effect seems to be slight dizziness when coupled with numb feet, makes balance an issues. Despite the neuropathy and Lyrica, I do not fall as I did with Cymbalta. I take Lyrica twice and Tramadol 4 times a day and now have days or parts of days when I can move around fairly well—walking for exercise is still not an option.
Liked by rwinney, iceblue
I'm sorry you're not able to get around very well. I am able to walk, my feet don't always hurt so bad. I don't take Lyrica because the last time I tried it I gained 4 pounds in one week I know that sounds terrible but I was scared I was going to gain 30 lb in 1 month. I take percocets every so often and they don't help at all. Is Cymbalta doesn't cause me to have the memory problems like the way that you are having. So I don't know what they can give me that will help. So I wish you the best.
Liked by dckuke
Hi Laura, Was wondering, what kind of hoops did you have to go through to get a video appointment at Mayo? Thx, Terry
👍👍👍 Three thumbs up, Laura! Peggy
Hello @terrydclaar-You may seek an appointment at Mayo Clinic one of two ways actually.
#1 Self referral: If you would like to make an appointment at Mayo Clinic, please call one of our appointment offices. You can also request an appointment online. The contact information for Minnesota, Arizona and Florida can be found here: http://mayocl.in/1mtmR63
#2 Have your physician make the referral: You may speak to your physician to see if they are willing to make the referral on your behalf. This allows them to share any/all lab work and imaging at the time of the referral so your medical information may be routed to the appropriate department for review. I am not sure which area of the country you reside in so I will share the three location 1-800 numbers so you may share the one most appropriate with your physician.
Phoenix/Scottsdale AZ: 866-629-6362
Jacksonville FL: 800-634-1417
Rochester MN: 800-533-1564
Good luck to you.
Liked by John, Volunteer Mentor, Chris Trout, Volunteer Mentor, terrydclaar
Good morning @gldnrtrvrlvr, You are facing some tough challenges, not the least of which is living in Texas when medical cannabis may be a good choice for you to try. If I read your post correctly, you live in a smoke-filled house and although you are not a smoker, second-hand smoke is not a good environment.
Have you recovered from your accident in December? I am going to invite @merpreb to review your post. She may have some additional suggestions and experiences to share.
Now to your request. Because you live in Texas, you don't have the advantage of having a neighborhood dispensary that can work with you on dosages and dispensing options. At the time I began using medical cannabis, at least I had a couple of coaches, including the owner of the dispensary. I began with Indica or hybrid vapes. They had both CBD and THC at different levels. If you read the research you will see that CBD and THC are quite similar at the component level. And it does seem that when the two are combined the THC gives CBD a kick start.
What do you want medical cannabis to do for you? Are you looking for pain relief and a chance to reduce anxiety and depression? I also am very drug-sensitive and just cannot use other pain relievers and do not want to risk any addiction or annoying side effects. This company has capsules, tinctures, and balms. Those without THC can be shipped anywhere. I currently use a 1:3 CBD/THC releaf balm and the THC rich tincture !:3 CBD/THC.
I have found that just like other medications our bodies become adjusted to one dosage and the benefits seem to peter out. Then it is time to evaluate the dosages and timing again. P and B is very responsive to questions you may have. You can also subscribe to "Leafy" an industry publication that is reputable.
Good luck with the search. Let me know what works for you.
Be safe and protected today.
In response to a non-thc cbd I would suggest 2 products which have worked for me: Shanti soothe balm and Shanti rejuvenate roll on. The balm has worked for my hand pain and the roll on which seems to be stronger I have used for my hip bursitis. I believe you can purchase this brand online; I wish you good luck in finding something which helps with your pain. Helen
@helennicola Thank for this information. I do like the balm I will look this up online
@gldnrtrvrlvr– Hello. It sounds as if you are having a pretty difficult time. I actually just switched to Fountain of Health, 2,000 mg. Full-spectrum and I love it. The oil comes from Colorado. It's sold in one of my local stores. It's organic too. I don't like THC. Being stoned isn't my thing anymore. I take CBD oil for anxiety. Is this what you want it for?
@lioness, you’re welcome, hope it helps. Helen
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