neurologists and brain scans three doctors 2 different diagnosis help

Posted by Michele @blessed09, May 8 1:14pm

there is so much confusion and conflicted info on determining MS . Spinal tap was done on me as more or less to confirm MRI’s and evoked vision testing and others.
From 2015 I have been diagnosed and treated for MS and GBS.
Two neurologist diagnosed Me with MS
One told me after another MRI w/o contrast (usually w and w/o were done) no exam of any kind not even then mental, physical standard for brain and nerve conditions. Just said mri was abnormal and could be from a variety of reasons he was the head neurologist for MS .
However , spinal tap from 2016 or to order current one which is a test done amongst MRI, evoked vision test and more.
When Mri is abnormal and patients symptoms need to be further tested. I need by last MRI and a new imaging MRA still abnormal mra should what is considered nothing nothing size aneurysm . Some vascular issues.
I became so mentally exhausted and the GBS seemed to be just something I said, but no concern or questions it’s like 6 months of intravenous plasma treatment which I believe as did my pcp landed be in hospital due to the dr.’s lack of concern or advised by nurse giving me ivig to pause a couple weeks when my veins needed heat and other things in order to find them on either arm, when my blood pressure kept getting lower with each treatment I spent more time afterwards in bed. Became anemic , developed ulcer, pneumonia , bleeding internally , blood transfusion
She was getting $3,500 each infusion from my insurance co.
Greed not my well-being took priority . All that and GBS was a note in my chart period. I had spinal surgery and still need neck surgery. Had fibromyalgia years before the journey with my brain.
I stopped seeing neurologist or other necessary specialist for thyroid , body over run with arthritis and on.
I took 3 + years being beat knocked in walks as a young teen mom and wife is there a connection to my brain and neuropathy to MS
I don’t know where to turn

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dlydailyhope | @dlydailyhope | May 9 6:38am

@blessed09
Hi, Michele. I am going for my brain MRI this morning to rule out MS. My symptom list is very long. I have cervical and lumbar stenosis and degenerative disc disease/spondylosis/arthritis. I also have small fiber neuropathy and Hashimoto’s thyroiditis. You may want to go to a new neurologist and start fresh with new MRIs (brain/cervical/lumbar), MRAs, EMGs, nerve conduction studies, small fiber neuropathy skin punch biopsy plus see an endocrinologist for your thyroid and rheumatologist for in-depth autoimmune blood panels. I may also have some lupus markers and cardio lipid autoantibodies for anti phospholipid syndrome (blood clotting issue). I started with a new neurologist last week (haven’t seen one since 2019) and need to get updated EMGs/nerve conduction since my ACDF surgery on c5c6 due to cervical spondylitic myelopathy (dropping things, handwriting worsened, walking difficult, loss of bladder control and bladder urgency, etc.).

Don’t give up advocating for yourself. You know yourself and your symptoms best. Push your doctors to help you get properly diagnosed and treated to improve your quality of life. I am a 54 year old single parent of a 14 year old son and need to stop the downward decline of my health asap! I wish doctors cared more about prevention and patients’ quality of life. Good luck and praying you get some help and answers.

dlydailyhope | @dlydailyhope | May 9 6:48am

@blessed09
P.S. I also get spine injections to manage pain, take Gabapentin for nerve pain (only 100 mg at night), alpha Lipoic acid and Acetyl l carnitine for nerve pain, use lidocaine pain patches (like the Salonpas brand), and take bupropion for depression (chronic pain really does a number on your mental health). My hypothyroidism post thyroid lobectomy requires me to take levothyroxine (100 mcg). My TSH had fallen in the “normal” range for years but I felt far from my normal self. I also gained over 70 pounds in 6+ years with no real change in eating. My previous doctors seemed to ignore abnormal results in tests which makes me wonder why they do them if they just ignore abnormal results. I have had 3 EKGs that showed “old infarct” but no doctor batted an eye. I am also the one who found my thyroid nodule in a CT scan for my cervical spine surgery. No doctor pointed it out to me (have a family history of Hashimoto’s and thyroid cancer and my blood work showed thyroid autoantibodies in 2017 and 2019 but the rheumatologist said nothing). Doctors are human, make mistakes, and some have huge egos and think they are God. They are not!