Nerve biopsy test: Is it done by a neurologist or rheumatologist?

Posted by maryflorida @maryflorida, Aug 4, 2020

What kind of doctor do I see for the nerve biopsy test? My PCP sent me to a rheumatologist for a diagnosis. She feels it is fibromyalgia but prior doctor in Wash. state said it is neuropathy. She won’t arrange for the biopsy. Which kind of doctor can finally give me a diagnosis or is she right? All she is offering is amitriptyline for pain. I do take norco too, but my PCP would like me to get off that. I need advice.

@maryflorida

Thanks. I was at Mayo last week (4 times) with my husband. The registrar said for me to contact my insurance company to see what they'll cover. Unfortunately, family matters came first (as usual) so I forgot. I'll call them Monday.

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I was accepted with Blue Cross out of network coverage through Medicare.

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@maryflorida

Thanks. I was at Mayo last week (4 times) with my husband. The registrar said for me to contact my insurance company to see what they'll cover. Unfortunately, family matters came first (as usual) so I forgot. I'll call them Monday.

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If you live near Mayo, considering you're there with your husband, then perhaps it's in your network already. Good luck when calling your insurance company. I hope you already have the coverage and dont need to wait for open enrollment.

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@maryflorida

Thanks. I was at Mayo last week (4 times) with my husband. The registrar said for me to contact my insurance company to see what they'll cover. Unfortunately, family matters came first (as usual) so I forgot. I'll call them Monday.

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Hi Mary @maryflorida – Mayo does have a page on their website that gives some information on billing and insurance that might be helpful: https://www.mayoclinic.org/patient-visitor-guide/billing-insurance/insurance/accepted-insurance/medicare/more-on-medicare

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Thank you. I will check it out right now.

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@rwinney

@sunnyflower It doesnt appear that I can attach to a private message so, here you go! Hoping its helpful for all to see who may be curious about skin punch biopsy.

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Hello Rachel, please forgive me for taking so long to find this report! And, I have no idea how I wound up in the private message section as you said I did before. I believe part of the problem is that I use my phone mostly and I don't think it's as capable as my laptop or rather tablet so I will try to keep that in mind. Please forgive me I I'm so limited in the times I feel good enough to talk with you and other people. What up thoughtful, Brave thing you did to share your pathology report. I hope to learn a lot from it and what the results mean. I just feel like I want to go in at UK today when I approach my neurologist. Thank you again it means so much that you took the time to share that with me and us. I hope you are feeling tolerable of your pain more than not tolerable. That's how I judge it I'm intolerable and or fighting for my sanity or the Gabapentin is helping to dull the pain enough that it's tolerable. I know you get it and everyone on this blog gets it too. It's unrelenting. Honestly and truly I cannot remember what it feels like to not hurt so bad in so many ways all over my entire body. Take good care of yourself and I wish you all the best! Warmest regards, Sunny flower

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@sunnyflower

Hello Rachel, please forgive me for taking so long to find this report! And, I have no idea how I wound up in the private message section as you said I did before. I believe part of the problem is that I use my phone mostly and I don't think it's as capable as my laptop or rather tablet so I will try to keep that in mind. Please forgive me I I'm so limited in the times I feel good enough to talk with you and other people. What up thoughtful, Brave thing you did to share your pathology report. I hope to learn a lot from it and what the results mean. I just feel like I want to go in at UK today when I approach my neurologist. Thank you again it means so much that you took the time to share that with me and us. I hope you are feeling tolerable of your pain more than not tolerable. That's how I judge it I'm intolerable and or fighting for my sanity or the Gabapentin is helping to dull the pain enough that it's tolerable. I know you get it and everyone on this blog gets it too. It's unrelenting. Honestly and truly I cannot remember what it feels like to not hurt so bad in so many ways all over my entire body. Take good care of yourself and I wish you all the best! Warmest regards, Sunny flower

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Oops, I did not edit enough I guess. What I meant to say is that I want to go to my neurologist with some education behind me about these biopsies. Sorry! I'm really uniquely talented that way LOL!

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@sunnyflower

Hello Rachel, please forgive me for taking so long to find this report! And, I have no idea how I wound up in the private message section as you said I did before. I believe part of the problem is that I use my phone mostly and I don't think it's as capable as my laptop or rather tablet so I will try to keep that in mind. Please forgive me I I'm so limited in the times I feel good enough to talk with you and other people. What up thoughtful, Brave thing you did to share your pathology report. I hope to learn a lot from it and what the results mean. I just feel like I want to go in at UK today when I approach my neurologist. Thank you again it means so much that you took the time to share that with me and us. I hope you are feeling tolerable of your pain more than not tolerable. That's how I judge it I'm intolerable and or fighting for my sanity or the Gabapentin is helping to dull the pain enough that it's tolerable. I know you get it and everyone on this blog gets it too. It's unrelenting. Honestly and truly I cannot remember what it feels like to not hurt so bad in so many ways all over my entire body. Take good care of yourself and I wish you all the best! Warmest regards, Sunny flower

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Hi @sunnyflower just a quick moment to chime in on this post to tell you that we here DO "get it". My wife does not use computers, smart phones or pretty much ANY technology, as her brain is wired in such a way as it's difficult for her to do (and even abhorrent). So I keep up with everything here as much as I can and I choose posts and conversations to read to her. You are one person, among several here (or many here actually) who are so inspiring to hear speak about their neuropathy and the suffering that comes of it (and the ways they try to transcend it) that I am frequently compelled to share their stories with her. I find many moments of inspiration amidst the struggles here. I just love it when someone begins to post regularly here as it is so helpful to so many others. I believe the point of being here is to be able to take away tidbits of information and encouragement from others, but I believe it is also a place to come to share with and give what we can to others. It's a blessing that you are here, telling us what you are going though and listening to others do the same.

I am not sure what exactly I am trying to say with this post except I am thankful for this place (Connect) where we can try to give and receive help; life has little hidden gems for us as we travel along it's path, and this forum has certainly been one for my wife and I. Thanks for sharing your stories and experiences, Sunnyflower. And more broadly, thank-you to the others here who are doing the same, it is greatly appreciated! Best, Hank

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@sunnyflower

Hello Rachel, please forgive me for taking so long to find this report! And, I have no idea how I wound up in the private message section as you said I did before. I believe part of the problem is that I use my phone mostly and I don't think it's as capable as my laptop or rather tablet so I will try to keep that in mind. Please forgive me I I'm so limited in the times I feel good enough to talk with you and other people. What up thoughtful, Brave thing you did to share your pathology report. I hope to learn a lot from it and what the results mean. I just feel like I want to go in at UK today when I approach my neurologist. Thank you again it means so much that you took the time to share that with me and us. I hope you are feeling tolerable of your pain more than not tolerable. That's how I judge it I'm intolerable and or fighting for my sanity or the Gabapentin is helping to dull the pain enough that it's tolerable. I know you get it and everyone on this blog gets it too. It's unrelenting. Honestly and truly I cannot remember what it feels like to not hurt so bad in so many ways all over my entire body. Take good care of yourself and I wish you all the best! Warmest regards, Sunny flower

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Thank you so much.

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@sunnyflower

Oops, I did not edit enough I guess. What I meant to say is that I want to go to my neurologist with some education behind me about these biopsies. Sorry! I'm really uniquely talented that way LOL!

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🤗

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@sunnyflower what dosage of gabapentin are you on that is helping, I am working up and I still have the burning shooting pains all over my body, not just my legs and feet.

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@jesfactsmon

Hi @sunnyflower just a quick moment to chime in on this post to tell you that we here DO "get it". My wife does not use computers, smart phones or pretty much ANY technology, as her brain is wired in such a way as it's difficult for her to do (and even abhorrent). So I keep up with everything here as much as I can and I choose posts and conversations to read to her. You are one person, among several here (or many here actually) who are so inspiring to hear speak about their neuropathy and the suffering that comes of it (and the ways they try to transcend it) that I am frequently compelled to share their stories with her. I find many moments of inspiration amidst the struggles here. I just love it when someone begins to post regularly here as it is so helpful to so many others. I believe the point of being here is to be able to take away tidbits of information and encouragement from others, but I believe it is also a place to come to share with and give what we can to others. It's a blessing that you are here, telling us what you are going though and listening to others do the same.

I am not sure what exactly I am trying to say with this post except I am thankful for this place (Connect) where we can try to give and receive help; life has little hidden gems for us as we travel along it's path, and this forum has certainly been one for my wife and I. Thanks for sharing your stories and experiences, Sunnyflower. And more broadly, thank-you to the others here who are doing the same, it is greatly appreciated! Best, Hank

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Thank you for your kind words Hank! They put a smile on my face! Hope your and your wife's day is as good as it can possibly be! Warmest regards, Sunnyflower

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@slturley

@sunnyflower what dosage of gabapentin are you on that is helping, I am working up and I still have the burning shooting pains all over my body, not just my legs and feet.

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Hi Stephanie, thanks for reaching out! I'm not a good one to ask about Gabapentin. I have such horrible side-effects from this medicine and am only taking a sub-therapeutic dose at 800mg. per day. I feel so drugged w/ this medication. It affects my ability to track thoughts and really does a number on my memory and sometimes judgment. Also, I will think a thought and it will disappear instantly before I can do with it what I need to do. It eventually comes back, but it could in a few minutes or often, a day or so later. I described the vision disturbances it gives me yesterday under the subject of eyes I believe. Why do I continue on it, is because it dulls my pain to a tolerable or barely tolerable level. I hope that helps. Everyone responds differently to medications, even a Tylenol. Unfortunately, you just have to try to know. I've gone up and down on my dose quite a few times. I was started at 100mg. twice daily at first but since have learned that it must be taken 3 times daily, at least for most people I believe. It doesn't have that long of a half-life so thus, take doses closer together in a day. I tried Lyrica but thought the side-effects were worse and it didn't dull my pain as much as the Gaba. BTW, my pain is all over as well. I have several diseases and conditions which are painful besides my neuropathy which is such a wicked disease! Burn/sting/numb….horrible! Unrelenting. I hope and pray this medication will help you and that you find your right dose. For some people, I think over time it needs to be adjusted. I'm shocked to read some are taking over 3,000mg./day!!!!!!!!!! Hang in sister and warmest regards, Sunnyflower.

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