Neuroendocrine tumour in head of pancreas

Posted by taf @taf, 2 days ago

I was diagnosed months ago with well differentiated tumour in the pancreas. But doctors are not moving ahead on surgery. They are just taking a watch and wait approach while I am getting more anxious. I’m worried that I will be getting more sick and eventually no treatment will help.

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

Teresa, Volunteer Mentor | @hopeful33250 | 1 day ago

Hello @taf and welcome to the NETs support group on Mayo Connect. I can understand your concern about the watch and wait approach. It does create a lot of anxiety.

There are many members on Connect who also have NETs on the pancreas. Here is a link to many of their posts, https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/?search=NET+on+pancreas#discussion-listview. I would encourage you to read these posts and see how others are responding to treatments. Feel free to post to any member by clicking on "Reply" or "Comment" below their post.

How are you feeling? Is your blood sugar affected by this tumor on your pancreas?

gustavo1975 | @gustavo1975 | 14 hours ago

Hello, I'm very sorry for what you're going through. My wife have been through it. A grade 3 well-differentiated neuroendocrine tumor. No metastases or infiltrated lymph nodes. My wife's tumor was functional; it produced ACTH, which produced excess cortisol, causing Cushing's syndrome. She underwent tumor enucleation on March 4, 2024. As of today, she is disease-free. Yesterday, she had follow-up CT scans, and the reports all came back normal. I'm not a doctor, but I encourage you to discuss all your doubts with your medical team. Ask if surgery is an option for your case. What type of tumor you have. What is causing that tumor? Remember that the golden rule for a cure is surgery when possible. I encourage you to ask your doctor all the questions you think are necessary. I wish you the best of luck on this journey. I hope you understand my English. I wrote it using Google Translate. I write in Spanish.

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cu2 | @cu2 | 9 hours ago

Hello Everyone Has anybody ever had a Small bowel resection and whats the recovery like.

Teresa, Volunteer Mentor | @hopeful33250 | 7 hours ago

In reply to @cu2 "Hello Everyone Has anybody ever had a Small bowel resection and whats the recovery like." + (show)

Hello @cu2,

I have had two resections of the duodenal bulb. The carcinoids were small. Do you know the size of the lesions that are going to be removed by resection?

My recovery was uneventful. It took a while before I begin eating a regular diet. For several days after surgery, I had an NG tube and did not eat until that was removed.

Is small bowel resection surgery already scheduled for you?