Support Groups

Neuroendocrine Tumors (NETs) Support Group

Public Support Group
361 total results
Discussion
NET-VIPoma pancreatic tumors
Good day, After suffering for 5 years with no answers, I was diagnosed with non staged NET-VIP tumors in the pancreas in 11/2021. On 1/22...
Last active: Jan 4, 2023
Discussion
Follow up surgery for PNET
I had a distal pancreatomy with splenectomy on March 10th for NET in pancreas. All was well. Good recovery. Went on Monday for my 6months...
Last active: Sep 24, 2023
Discussion
Scared - Suspected NET on tail of the pancreas
Confused by the information online re: NETs. There is a 2.3 x 1.7 mass on the tail of my pancreas with no vascular activity. The...
Last active: Mar 13, 2023
Discussion
Tomorrow is Surgery Day: NETs in pancreas tail
After a surprise CT Scan revealed a 2CM Neuroendocrine Tumor on the tail of my pancreas in February I am finally going in for surgery...
Last active: Jul 7, 2023
Discussion
Need more information on net in head of pancreas
Am trying to find out more about net in the head of pancreas any information would be appreciated this makes a year I have add...
Last active: Jan 23, 2024
Discussion
Just diagnosed with pancreatic NET stage 1
I’m a 64 year old woman, I’ve have colon issues for decades among other issues. They found my tumor on a CT scan, I don’t...
Last active: May 14, 2024
Discussion
Pancreatic NETs: Looking to connect with anyone with insulinoma
Looking to connect with anyone who has an insulinoma. My tumor presents in the pancrease. I currently have chemotherapy bi weekly since July 2022. This...
Last active: 5 days ago
Discussion
NET in body of pancreas: What are my treatment options?
I have two tumors in body of pancreas 1.4 cm and a 6 mm. One was biopsies and apparently it’s a NET. Was told to...
Last active: Jun 16, 2024
Discussion
Investigations for pancreatic lesions, NETs? Confused and concerned
Does anyone understand my CT w/contrast results? Details Study Result Impression IMPRESSION: -Two 1 cm pancreatic lesions are unchanged. The lesion in the neck appears...
Last active: Nov 21, 2022
Discussion
Anyone have experience with "functioning" Pancreatic NETs?
I was recently diagnosed with PNETS saw an oncologist and had a second opinion through University of Kansas. Through that session I learned my tumors...
Last active: Mar 30, 2024