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Prostate Cancer with Neuroendocrine involvement found on pathology

Posted by billyh @billyh, Mar 13, 2023

Have any of you had Neuroendocrine involvement found on your pathology report after your RARP? If so, what type of treatment did you receive and how soon post op?

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Colleen Young, Connect Director | @colleenyoung | Apr 9, 2023

@billyh, I'm tagging fellow prostate cancer members @zj69 and @chuck53 who also have neuroendocrine prostate cancer (NEPC). I've also included your discussion in the Neuroendocrine Tumors (NETs) support group https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/

Billy, what treatment plan was recommended for you?

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billyh | @billyh | Apr 9, 2023
In reply to @colleenyoung "@billyh, I'm tagging fellow prostate cancer members @zj69 and @chuck53 who also have neuroendocrine prostate cancer..." + (show)
@colleenyoung

@billyh, I'm tagging fellow prostate cancer members @zj69 and @chuck53 who also have neuroendocrine prostate cancer (NEPC). I've also included your discussion in the Neuroendocrine Tumors (NETs) support group https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/

Billy, what treatment plan was recommended for you?

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I am presently in Japan and will be meeting with my oncologist the day after I return to discuss the treatment plan.
We are at a very early stage and not sure of the actual Neuroendocrine involvement. My chromogranin A is 165. At this point, I’m looking for more information in general.
My most recent PSA was

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