NET tumor of pancreas (1 cm) diagnosed

Also, the result of a blood test, chromogranin A NG/mL, was very high (176.5 vs the highest normal range of 101). Dr said this is high when the tumor is NET.

My CgA is extremely high however my oncologist and gastrointestinal doctors are not concerned. Reason- there are other factors that contribute to high CgA. ie any medication for heart burn usually increases
Numbers as well as other meds. There is another blood test-Pancreatic polypeptide that also is beneficial
Lots of non surgical tests are available
(I had a Whipple; as I am not an advocate of the wait and see scenarios. Won’t lie to you. It’s not a fun operation my PNET was stage 1 grade 2
5-1/2 years ago).
You must be your own advocate Find the best PNET doctor and oncologist

Hi there. The biopsy can only reveal the type of tumor. And I believe whether it is more or less dangerous. There’s a blood test you can get called Chromagranin A that reveals how fast they are growing. If you can afford to get a second opinion, I would if I were you.

Depending on where your net is located, a 1cm tumor that’s well differentiated will not tend to spread. The other way to determine rate of growth is simply repeating the scans every six months to a year. The radiologist’s job is to compare all of the scans to determine or estimate the size.

Sounds a little similar to mine. Mine was found incidentally too. I did have the biopsy to discover what it was. Not sure how you know it's a NET without it. Mine was blocking the pancreatic duct and half of my pancreas had 'atrophied'. I had a few consultations. One said leave it and monitor, 2nd was take it out, third was Mayo and they agreed to take it out. I came home ( I'm not American) and had it removed . Turns out it had spread to one out of nine lymph nodes they removed during surgery. Waiting to hear treatment plan if there is one. I'm 64, so a tad younger. I am glad I did the surgery but yes it was a journey but I had them keep my spleen and that in hindsight, was a mistake. That is what caused it to be a bigger journey! All the best. Hope you get some clear answers and can make comfortable decisions on what to do.

I found out accidently that I to have a NET( 1.5 cm, Grade 1) as well, I had a biopsy done and I was told Bad news It is Cancerous, Good News it is slow growing. They are just going to wait and see, and I am to have a MRI every
six months. I was to have a MRI in March the six month date. I had to call twice to see what was going on.
I sent a Email, My doctor send a email - Finally at 3:00 am I got my MRI on the 25th of June. Still waiting for
results. This will be the first MRI since the original, So I am anxious to find out the results.
I am 65, My mother died of Pancreatic Cancer.

Hello, I'm sorry for what you're going through. My wife underwent enucleation of a pancreatic tumor (NET). She had no major complications other than the drains. The enucleation was performed in March 2024, without any other type of treatment. My wife's tumor was functional, it secreted ACTH, which caused, in addition to the cancer itself, ectopic Cushing's syndrome. Since the tumor was removed, my wife has returned to normal. Obviously, she needs regular checkups, every 3 months for the first year, now every 6 months, CT scans, MRIs, and a PET CT scan with gallium 68. My recommendation is that you seek a second opinion, and if possible, have a removal. Regards

Sorry for my English, i speak spanish

That is awesome. So happy for you both. Where did she have the surgery?

So happy that your wife is doing good and returned to normal.
I am trying to have a positive outlook and that things will be fine.
Will see my Family doctor in 3 weeks and will see if there is someone
that I can see for a second opinion.
By the way your English is perfect.
Regards

Your English is excellent! Best to you and your wife. Cushing’s is not easy! So glad she’s recovering!

Hello. Thank you. She had surgery in Argentina, Buenos Aires, and was diagnosed in a university hospital.