NET so worried

Hello @catherinemary and welcome to the NETs support group on Mayo Connect. I hope you will share more about your journey with NETs. As you do so, I'll help you to connect with other members in our NET group who are in a similar place.

I have had three surgeries for NETs, over the past 21 years, in the upper digestive tract. The only treatments I have needed are surgeries.

Is this a new diagnosis for you? Would you be able to share where your NET is located? I look forward to hearing from you again.

Hello Teresa, and thank you for your words of welcome. I am about to leave home for a short time however I will give a rundown of what’s been happening over the past few months a bit later today. Thank you, Cathy

Good morning! Still very very anxious about my appt with a medical oncologist at the Royal Brisbane and Women’s Hospital tomorrow. The oncologist at ICON cancer (a private group practice) made this appt for me.
Cheers, Cathy

Good thoughts go with you as go to this appointment, @catherinemary. Here is a link to a discussion, "Keys to a Successful Doctor's Appointment" that might help you to navigate the first meeting with the oncologist.
https://connect.mayoclinic.org/discussion/keys-to-a-successful-doctors-appointment/
Will you post again and let me know how you are doing?

Thank you so much for this link! You are so kind to think of me in this way. I’m so anxious that my legs feel like jelly and even my teeth are chattering. I have a long history of anxiety and panic disorder (16 first panic attack, 73 yr old this year); That was brought on by my worry about a medical I had to have for my employment. So the anxiety re this appt is through the roof. My darling sister is keeping me afloat as best she can - so unfair on her to carry me like she is. My husband went into care this year as he was having multiple falls, one which req ICU. I’m trying lots of self talk to try and break how I feel down to manageable bits. Thank you for reading this and also for your kind words. Cathy