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michelewithonel
@michelewithonel

Posts: 6
Joined: Oct 20, 2017

Nerve biopsy

Posted by @michelewithonel, Dec 28, 2017

I had a nerve biopsy done at the Rochester Mayo Clinic on Dec 21st. They took 10cm from my upper arm. They told me my arm will be numb from my wrist to elbow but there are times I feet it in my hand, my upper arm, neck and face. I also get random twitches and what feels like electrical shocks in my arm, some times they are irritating and other times very painful. I am also much weaker in that hand and arm than I was before.

I was wondering if anyone else has had a nerve biopsy and how symptoms are for them.

REPLY

I have all the pain symptoms you are experiencing except my pain is in my legs (bilateral). I had a combination nerve and muscle biopsy at Emory Hospital in Atlanta. The results of those biopsies were NOTHING, nothing unusual or of interest was uncovered. I now question the value of such procedures when issues like Neuropathy are at issue.
In answer to your question, I can say that, after a day or two of discomfort around the incision area, there have been no aftereffects from the biopsies.
Good luck in your quest for relief.

@arnrob

I have all the pain symptoms you are experiencing except my pain is in my legs (bilateral). I had a combination nerve and muscle biopsy at Emory Hospital in Atlanta. The results of those biopsies were NOTHING, nothing unusual or of interest was uncovered. I now question the value of such procedures when issues like Neuropathy are at issue.
In answer to your question, I can say that, after a day or two of discomfort around the incision area, there have been no aftereffects from the biopsies.
Good luck in your quest for relief.

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I have the legs from knees down and arms and hands,I had the nerve biopsy done @the top of my thigh,but it really was a waste,I’ve had just about every test,nada.So it’s progressed rapidly in 2years.So peripheral neuropathy,scleroderma,reynauds and lupus.Nothing has help so far.I’m thinking of trying the antibiotics route.I basically walk as muchas possible,I have over used my hands,so they’re completely numb now,but I can still open and close my fingers..My husband has been the sweetest,he had to adjust,I was always busy,doing everything,dancing in the kitchen cooking,shopping etc.Now he is my caregiver,does all the laundry,cooking,dishes,etc.Thanking God,about 50 times @ day.I’m still functioning so,ewhat.Life is good,I live now in Florida,out by my pool,in the shade,every day,it’s my saving grace.I am really a very happy go lucky person,so I not down with all this,just living the best I can with what I’ve got.on that long note,I’ll wish for you a happy,healthier New Year!

@michelewithonel

I haven’t had a biopsy in my arms, but I had a set of 3 on my leg all at the same time. I had a little pain and some discomfort for a couple of days. The biopsies were informative for me, though it didn’t change my treatment. They indicated that I have small fiber neuropathy. My symptoms have been primarily in my feet and I had a spinal cord stimulator implant in June that has greatly reduced the pain. I had an audio evoke test done, as well, which indicated autonomic neuropathy. A few years ago, I knew nothing about neuropathy, and wish I still did. It’s hard to treat, often impossible. I learned after my diagnosis that most of my five siblings have it, and my father almost certainly did, though I never heard that he knew what the problem was.

I hope the symptoms you’re experiencing will stop soon. Have you told your doctor about them? He/she should surely know. If you haven’t already, I would certainly encourage you to do so. If they aren’t concerned, I would talk to another doctor about it, because in my mind, your symptoms are quite concerning.

Jim

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