Need hope: Neuropathy from chemo

Posted by needshope78 @needshope78, Apr 24, 2020

Is there anyone going through neuropathy from chemo. If so how long until my mother will be able to walk again afterwards. It’s been 8 weeks every week gets worse

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@clogfwc123charlotte

I had a total hysterectomy in April 2024, a mass 8.cm found on right ovary. It was a rare Brenner tumor.
I have one more round of chemo out of 6 of Carboplatin and Taxol. The tumor was encapsulated in the ovary.
The chemo is termed preventative chemo to help kill any microspic cancer cells. Today is day 14 after the last chemo, and I am still feeling very tired, numbness in feet, knees and ankles swollen and walking is a bit unbalanced. I believe these symptoms are from a steroid prescription I was provided called Dexamethasone 4mg tablet. I had just about all the side effects listed on the fact sheet.
My question is. I have one more round of chemo next Saturday, and I am thinking about not completing this last round. Would it really make a difference not to go through the last one? I truly do not want to go through another two weeks like these past two. However, I definitely would not take the steroid again!! I do not want to be a quitter, but is it justified?

Connie

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Hi Connie, I know it’s tempting to stop chemo because side effects can be so harsh. However, the medication has a job to do and that is attacking and killing off cancer cells. Some cancer cells can be elusive to treatment. So it becomes necessary to do a progressive treatment plan to snag all of the cells for a better chance of remission.

From my experience, I do know that it takes longer to recover with each successive round of chemo. But you’re so close to the finish line with having only one more round to go. I’d encourage you to follow through and get that last round. If you didn’t and by chance the cancer returned, you’d always be kicking yourself for not going the extra mile to better secure your future. Does that make sense?

Dexamethasone is generally given with Carboplatin to help avoid nausea and vomiting. It’s a fairly low dosage. If you think the Dexa is what caused the side effects you could ask your hematologist for another anti nausea med. The side effects may have been caused by the chemo itself. Many of the symptoms you’re describing can be caused by Carboplatin and not so much the Dexa.
So hang in there…you only have one more round and then you’re on the road to healing and recovery. It may take time to regain your strength, energy and stamina. Walking daily, even for a few minutes at a time, working your way up to a sustained 15 to 30 minutes can really make a difference in your endurance and attitude. You’ve made it this far so keep on going to the finish line!! ☺️

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I had a total hysterectomy in April 2024, a mass 8.cm found on right ovary. It was a rare Brenner tumor.
I have one more round of chemo out of 6 of Carboplatin and Taxol. The tumor was encapsulated in the ovary.
The chemo is termed preventative chemo to help kill any microspic cancer cells. Today is day 14 after the last chemo, and I am still feeling very tired, numbness in feet, knees and ankles swollen and walking is a bit unbalanced. I believe these symptoms are from a steroid prescription I was provided called Dexamethasone 4mg tablet. I had just about all the side effects listed on the fact sheet.
My question is. I have one more round of chemo next Saturday, and I am thinking about not completing this last round. Would it really make a difference not to go through the last one? I truly do not want to go through another two weeks like these past two. However, I definitely would not take the steroid again!! I do not want to be a quitter, but is it justified?

Connie

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@nana02

I am sorry your Mother is suffering from this. I had endromedtrial cancer that metastisized to my pelvic bone. After radiation, I had 16 rounds of taxol and carboplatin. The third treatment my feet swelled and I could not put shoes on to get home. It has never gotten better. This was October 2019. They tingle and wake me up burning. I walk on a walker and do not feel confident walking with it. It is starting in my hands. I feel so trapped and sad. I also had my pelvic bone removed and replaced with a 3d prosthetic, which has left me in constant pain. I wish I had something positive to tell your Mom. My doctor's have not really tried much, just collateral damage. Please forgive me that I am no help.

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@nana02 I hope some of the tips on here can help you too

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@raebaby

It is probably hard to find one in my little town.

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It might be but see if you can look further afield. It is an excellent modality approved and often recommended by oncologists. It improves circulation, which raises energy levels and reduces inflammation.

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It is probably hard to find one in my little town.

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@raebaby

I have neuropathy in my feet and had to give up driving after chemo for breast cancer. It's really scary not being able to feel the brake. It seems to be a fact of life now and I take gabapentin which helps the numbness. I use a Voxxlife Liberty patch that has helped me with my balance.

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Acupuncture has been known to help with the various symptoms emerging from cancer treatment. If you decide on this please seek a very experienced Chinese medicine practitioner, not just anyone with a shingle posted outside their door.

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@cindysj

I want to follow the responses that are posted here. My sister developed terrible neuropathy in both feet when she was on drugs for a clinical trial. This week she is giving up her car because she can no longer feel the accelerator /brake pedal. She saw a neurologist last week who spoke to her about massage. Any other ideas out there???

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I have neuropathy in my feet and had to give up driving after chemo for breast cancer. It's really scary not being able to feel the brake. It seems to be a fact of life now and I take gabapentin which helps the numbness. I use a Voxxlife Liberty patch that has helped me with my balance.

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@bluebutterfly1972

Thank you. I will definitely give the co q 10 a try and see if I can get some pqq

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I get pqq at Amazon

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@jldavis823

In my case my neuropathy was in both hands and feet and did not lessen after treatment was over. About a year after the end of Chemo I found a study by the Cleveland clinic that showed promise using supplements. I’ve been taking them faithfully since, with great effect. The pain started to lessen within days. I’m not neuropathy free even after a year, but the pain is almost gone. I’m still left with some numbness but the difference is remarkable. I can’t find the link to the study anymore, but I posted the following on the Mayo neuropathy board a few months ago. “ There is no medication for neuropathy but there are numerous studies using supplements. I read one from the Cleveland Clinic that showed good results and have been following their recommendation with good results. They recommend taking 400 mg of CoQ10 and 20 mg of PQQ daily. The neuropathy in my hands is completely gone and my feet are much improved. The majority of the pain in my feet is gone, but I still have numbness in some places. I started this a year after chemo. The hands showed improvement quickly, the feet were slower. But the worst of the pain was gone in 3-4 months. Not an overnight cure, but my pain is gone.”

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Thank you. I will definitely give the co q 10 a try and see if I can get some pqq

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I also have the neuropathy in both hands and feet. It started in just my feet with the chemo and now I'm on immunotherapy (Imfinzi) so it has gotten worse in my feet (but still manageable) but has now reached my hands - THIS is very annoying in that I cannot feel my fingertips and it's very difficult to open jars, etc. My Oncologist has suggested BComplex vitamin so I have started on that. I also use a cream on my hands and feet at night (wear socks and gloves). It's called Magnilife Pain Relieving Foot Cream and it does help. I've also tried Vicks on both hands and feet and it did help somewhat. I'll be curious to see if when the immunotherapy is finished if it subsides to a more manageable level. If there's a magic bullit out there, I would take it. I also agree that vibration therapy can help...lots of good suggestions here.
Good luck NeedHope...I hope that something works for you.

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