1. < Cancer: Managing Symptoms

Need hope: Neuropathy from chemo

Posted by needshope78 @needshope78, Apr 24, 2020

Is there anyone going through neuropathy from chemo. If so how long until my mother will be able to walk again afterwards. It’s been 8 weeks every week gets worse

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Mentor
John, Volunteer Mentor | @johnbishop | 19 hours ago
In reply to @3740 "Anyone heard of a Product …. WALKASINS … a Lower Limb Sensory Prosthesis? They’re quite Expensive..." + (show)
@3740

Anyone heard of a Product …. WALKASINS … a Lower Limb Sensory Prosthesis? They’re quite Expensive but the Video shows they work. Currently ONLY AVAILABLE through the VA. Don’t understand this? I’m a Veteran 1962-68 but I don’t qualify to receive Treatment 😳😠😖

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@3740 you can find more information on Walkasins in another discussion here:
--- Peripheral sensory neuropathy - Anyone tried Walkasins?:
https://connect.mayoclinic.org/discussion/peripheral-sensory-neuropathy-device/
@centre has posted experience about the Walkasins and may have more thoughts to share:
Below are links to the posts:
--- https://connect.mayoclinic.org/comment/659859/
--- https://connect.mayoclinic.org/comment/659866/

REPLY
3740 | @3740 | 20 hours ago
In reply to @lastround "I have neuropathy in my hands and feet from chemo treatments I have not tried it..." + (show)
@lastround

I have neuropathy in my hands and feet from chemo treatments I have not tried it but a nurse practitioner suggested trying acupuncture.
In my case the neuropathy got worse after the treatment ended but very slowly subsided to a manageable level.
Good luck

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My Hands are so Bad it’s hard to hold a Spoon or Fork to eat. The just feel Stif all the time. I need to keep exercising them so they won’t freeze up.

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3740 | @3740 | 20 hours ago

Anyone heard of a Product …. WALKASINS … a Lower Limb Sensory Prosthesis? They’re quite Expensive but the Video shows they work. Currently ONLY AVAILABLE through the VA. Don’t understand this? I’m a Veteran 1962-68 but I don’t qualify to receive Treatment 😳😠😖

REPLY
1 reply
clogfwc123charlotte | @clogfwc123charlotte | Sep 29, 2024

So sorry to hear this added burden to your treatment experience. Best of luck to you and thanks for the encouragement. I did get my last treatment yesterday!

REPLY
cvestor | @cvestor | Sep 28, 2024

I am also on my last treatment of 8 but had to cancelled it because health insurance stopped because of my husband death SO I have no insurance period Working on Medicare but it takes time a long time SO be lucky and get that last treatment and then you are done and can heal good luck

REPLY
clogfwc123charlotte | @clogfwc123charlotte | Sep 27, 2024
In reply to @colleenyoung "@clogfwc123charlotte, how are you doing? Did you work out a solution and way forward with your..." + (show)
@colleenyoung

@clogfwc123charlotte, how are you doing? Did you work out a solution and way forward with your oncology team?

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Yes. I have decided to do the last round of chemo, with 20% less chemical and no Nulasta, and no steroids! I am sure I will get through this!! Thanks again.
Connie

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Moderator
Colleen Young, Connect Director | @colleenyoung | Sep 27, 2024
In reply to @clogfwc123charlotte "Thank you for the support. I will be meeting with my oncology team on Thursday to..." + (show)
@clogfwc123charlotte

Thank you for the support. I will be meeting with my oncology team on Thursday to discuss some of the option of reducing the dose. I did buy glutamine, but not have been diligent in taking it every day. I will be better at taking that!

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@clogfwc123charlotte, how are you doing? Did you work out a solution and way forward with your oncology team?

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1 reply
clogfwc123charlotte | @clogfwc123charlotte | Sep 22, 2024
In reply to @aardvark2118 "Don’t skip the last round. I faced the same and was given the option to reduce..." + (show)
@aardvark2118

Don’t skip the last round. I faced the same and was given the option to reduce the dose slightly. Also took glutamine. You don’t want to always wonder

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Thank you for the support. I will be meeting with my oncology team on Thursday to discuss some of the option of reducing the dose. I did buy glutamine, but not have been diligent in taking it every day. I will be better at taking that!

REPLY
1 reply
aardvark2118 | @aardvark2118 | Sep 22, 2024
In reply to @clogfwc123charlotte "I had a total hysterectomy in April 2024, a mass 8.cm found on right ovary. It..." + (show)
@clogfwc123charlotte

I had a total hysterectomy in April 2024, a mass 8.cm found on right ovary. It was a rare Brenner tumor.
I have one more round of chemo out of 6 of Carboplatin and Taxol. The tumor was encapsulated in the ovary.
The chemo is termed preventative chemo to help kill any microspic cancer cells. Today is day 14 after the last chemo, and I am still feeling very tired, numbness in feet, knees and ankles swollen and walking is a bit unbalanced. I believe these symptoms are from a steroid prescription I was provided called Dexamethasone 4mg tablet. I had just about all the side effects listed on the fact sheet.
My question is. I have one more round of chemo next Saturday, and I am thinking about not completing this last round. Would it really make a difference not to go through the last one? I truly do not want to go through another two weeks like these past two. However, I definitely would not take the steroid again!! I do not want to be a quitter, but is it justified?

Connie

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Don’t skip the last round. I faced the same and was given the option to reduce the dose slightly. Also took glutamine. You don’t want to always wonder

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1 reply
clogfwc123charlotte | @clogfwc123charlotte | Sep 22, 2024

I truly appreciate your comments. You are most likely accurate. Today is better than yesterday, and tomorrow will be better than the next day! Thank you for your advice.

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