Need hope: Neuropathy from chemo
Is there anyone going through neuropathy from chemo. If so how long until my mother will be able to walk again afterwards. It’s been 8 weeks every week gets worse
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Hi I noticed you posted this comment a while ago I guess someone posted a reply today because it showed up for today. Well anyways how are you and your mother doing? I hope well.
My last chemo treatment was in November 2021 is now February 2023 I still have tingling and numbness in my feet I have read that it sometimes never goes away completely
I am also have neuropathy that seems to be getting worse instead of better. I did 6 months of 5fu and oxaliplatin. Now I'm on the 5fu and Irinetocan. While I was on the Oxaliplatin I didn't have much neuropathy, just a little tingling. The Dr. actually stopped it a little sooner than 6 months because my cold senstitivty was lasting the full 2 weeks between chemo treatments. A few weeks AFTER the drug was stopped, I started to get fairly severe neuropathy in my feet and eventually it extended to my hands. I also started to get a pulsing sensation in my lower legs and feet. It doesn't hurt. It's like a very low level pulse of electricity that hits both my left and right legs simultaneously…very weird! That has thankfully lessened in the last few weeks. I don't believe the fu or the Irinetocan are supposed to be causing this. If anybody knows of anything that can/should be done to reverse what's going on, I sure would appreciate the info. I try to walk a lot and am constantly massaging my feet and hands, but so far there's no improvement.
@cmdw2600, @ajh5285 and others – I'm not sure if you have seen this webinar from 2020 but thought it might be helpful.
— Webinar: Chemo-Induced Peripheral Neuropathy: https://www.foundationforpn.org/webinar-chemo-induced-peripheral-neuropathy/
Thank you for the best wishes – same to you.
I have tried acupuncture and Chinese herbs for continuing gut issues (perhaps my pancreatic exocrine insufficiency first revealing itself) and did not find them helpful.
I have also tried massage therapy since I have been seeing the same body worker for overall muscular tightness since 2001. As much as I wanted her recent treatment to work, I cannot say that I have seen any improvement (yet?). She has also urged me to take more magnesium for years to help with the tight muscles. I have tried, but all it does is interfere with my gut function.
Long way around of saying I'm still looking for some relief. Sorry.
I have neuropathy in my feet as a result of chemotherapy for triple negative breast cancer. My treatment ended three years ago.
My integrative medicine doctor recommends acupuncture and/or therapeutic massage. I have not tried either of these possible remedies yet as my neuropathy is annoying more than debilitating.
Best wishes.
Link to the NIH study
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3748123/
Pyridoxine for Prevention of Hand-Foot Syndrome Caused by Chemotherapy: A Systematic Review
The conclusion of this study published in 2013:
There is inadequate evidence to make any recommendation about using pyridoxine for prevention of HFS caused by chemotherapy. However, pyridoxine 400 mg may have some efficacy. Further studies of large sample sizes are needed to evaluate the efficacy and safety of pyridoxine, especially at high dose, in comparison with placebo.
Perhaps there is newer information? Check out the cited by list in the column to the right of the article.
@colleen, I wish I had something to add to this discussion for @cara8895 but I was very fortunate and didn’t experience any neuropathy from Chemo.
Hi Cara, welcome. I have included your question about neuropathy related to cisplatin to this existing discussion in the Cancer: Managing Symptoms group. See here:
– Need hope: Neuropathy from chemo: https://connect.mayoclinic.org/discussion/needshope/
You may also be interested in these related discussions:
– Chemo-related Neuropathy: https://connect.mayoclinic.org/discussion/1st-time-at-mayo-for-neuropathy/
– Does anyone have a treatment for Neuropathy due to chemo: https://connect.mayoclinic.org/discussion/does-anyone-have-a-treatment-for-nueropathy-due-to-chemo/
Fellow members @needshope78 @dlmdinia @valentinaz @loribmt @elizm @tessie63 @2onlow8 can also share their experience with you.
Cara, are you currently in treatment or have you rung the chemo bell? May I ask what type of cancer you were diagnosed with?
What have you found helpful for neuropathy [hands and feet] from chemotherapy with cisplantin?