Need hope: Neuropathy from chemo

Hi Tessie. First let me say I’m so very sorry for the loss of your husband. You mentioned that he had dementia. That’s such a cruel disease and incredibly difficult for the patient and the entire family. I know it can bring only a small level of comfort to know he’s finally at peace. Knowing what a difficult time this is, my thoughts and prayers are with you and your family.
I’m also sorry to hear you’re in this level of pain with your autoimmune disease. I applaud your tenacity and acceptance. You’re right, we don’t have a lot of alternatives and just have to live the best we can and strive for personal enjoyment out of each day that we’re granted. Sending you a gentle hug.

I am so sorry you are having such pain and uncomfort. I have neuropathy, Will be praying for you.

I’m just seeing this email now. I had ovarian cancer and endured a six hour surgery. After this surgery I got an autoimmune disease called GBS which affects the nerves as well. So between the chemo and this it was a double reaction to my nerves resulting in severe neuropathy. Because I was in the hospital for so long my feet dropped as well and are irreparable now. I can’t stand or walk alone without my walker. The good thing is I do not have the pain some have. I have severe numbness in my hands and feet and that comes with its own problems. My husband died of dementia on June the sixth so I’m kept busy now settling the estate.
I feel sorry for all those out there suffering from this painful, debilitating disease. I’ve had it now for a little over five years and I’ve accepted the fact that there is no cure for this when a lot of damage has been done to the nerves so I do my best to move on with my life. Really, what is the alternative?

Welcome @jksturgeon3, I take both CoQ10 and magnesium along with other supplements for my neuropathy. I don't have any pain symptoms with my neuropathy but do have the numbness and I mostly take the supplements in hopes of slowing or possibly stopping the progression of my neuropathy. The Foundation for Peripheral Neuropathy has a list of supplements known to help neuropathy in the complementary and alternative therapies document here - https://www.foundationforpn.org/therapies/.

Have you been diagnosed with neuropathy? What symptoms do you have?

Coq10 and magnesium for neuropathy?

@3740 you can find more information on Walkasins in another discussion here:
--- Peripheral sensory neuropathy - Anyone tried Walkasins?:
https://connect.mayoclinic.org/discussion/peripheral-sensory-neuropathy-device/
@centre has posted experience about the Walkasins and may have more thoughts to share:
Below are links to the posts:
--- https://connect.mayoclinic.org/comment/659859/
--- https://connect.mayoclinic.org/comment/659866/

My Hands are so Bad it’s hard to hold a Spoon or Fork to eat. The just feel Stif all the time. I need to keep exercising them so they won’t freeze up.

Anyone heard of a Product …. WALKASINS … a Lower Limb Sensory Prosthesis? They’re quite Expensive but the Video shows they work. Currently ONLY AVAILABLE through the VA. Don’t understand this? I’m a Veteran 1962-68 but I don’t qualify to receive Treatment 😳😠😖

So sorry to hear this added burden to your treatment experience. Best of luck to you and thanks for the encouragement. I did get my last treatment yesterday!

I am also on my last treatment of 8 but had to cancelled it because health insurance stopped because of my husband death SO I have no insurance period Working on Medicare but it takes time a long time SO be lucky and get that last treatment and then you are done and can heal good luck