Need hope: Neuropathy from chemo

Posted by needshope78 @needshope78, Apr 24, 2020

Is there anyone going through neuropathy from chemo. If so how long until my mother will be able to walk again afterwards. It’s been 8 weeks every week gets worse

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lesleym | @lesleym | Mar 20 6:38am

In reply to @lesleym "@beebe Yes, it is!" + (show)

@lesleym I'm sorry - I missed the second half of your question. My first treatments were for 2 weeks (Mon - Fri for 2 weeks for 1 hour each) and then I have been going back for "tune ups" every 3 months (5 days for 1/2 hour each).

lesleym | @lesleym | Mar 19 10:53am

In reply to @beebe "@lesleym, Is this what your are doing to help the neuropathy? How often do you get..." + (show)

@beebe Yes, it is!

beebe | @beebe | Mar 19 9:16am

In reply to @lesleym "I am getting Scrambler therapy at Mayo Phoenux. It has really helped me. It is offered..." + (show)

@lesleym, Is this what your are doing to help the neuropathy? How often do you get treatments?
https://www.hopkinsmedicine.org/news/newsroom/news-releases/2023/07/scrambler-therapy-may-offer-lasting-relief-for-chronic-pain-review-paper-suggests

lesleym | @lesleym | Mar 18 8:31am

I am getting Scrambler therapy at Mayo Phoenux. It has really helped me. It is offered through Palliative Care and my oncologist is who told me about it. I get the treatments for both hands & feet. I would definitely recommend she look into it.

nycmusic | @nycmusic | Mar 1 6:31pm

In reply to @nycmusic "@ thanks very much…so far, my friend doesn’t want to cold cap, or to use cold..." + (show)

@nycmusic the article really helpful ! Thanks so much !

nycmusic | @nycmusic | Mar 1 5:27pm

In reply to @beebe "@nycmusic Look into compression therapy for Neuropathy prevention. Here is an article on using compression therapy..." + (show)

@ thanks very much…so far, my friend doesn’t want to cold cap, or to use cold for hands and feet…she’s okay with compression stockings…. I’ll share your info with her and let her decide…she’s overwhelmed now, dealing with MS and uterine cancer…

beebe | @beebe | Mar 1 8:48am

In reply to @nycmusic "Anyone have alternatives to cold capping (and cold gloves/socks) ? Any special lotions help ? Trying..." + (show)

@nycmusic
Look into compression therapy for Neuropathy prevention. Here is an article on using compression therapy during treatment for breast cancer:
https://www.breastcancer.org/treatment-side-effects/neuropathy/compression-therapy
I wore support hose knee socks (30-40mmhg) during my infusions along with the cold socks. My feet still got neuropathy but think it was probably not as bad as it would have been if I did nothing and it never got bad enough to cause my Oncologist to reduce my Taxol dose.
For compression therapy on the hands I have read you can use disposable gloves in one size too small to help the hands. My hands actually faired pretty well with just the cold gloves (had two sets kept in ice chest with high quality freezer packs) and only got tingly on a few finger tips which resolved within 6 months.
Great you are helping your friend, the whole diagnosis and process can feel overwhelming.

nycmusic | @nycmusic | Feb 28 9:43am

Anyone have alternatives to cold capping (and cold gloves/socks) ? Any special lotions help ? Trying to help a friend…

nycmusic | @nycmusic | Feb 28 9:34am

So sorry for your mother’s suffering..I am helping a friend about to begin her chemo…alternatives to cold cap-and cold gloves, socks ?

Lori, Volunteer Mentor | @loribmt | Jun 19, 2025

In reply to @tessie63 "I’m just seeing this email now. I had ovarian cancer and endured a six hour surgery...." + (show)

Hi Tessie. First let me say I’m so very sorry for the loss of your husband. You mentioned that he had dementia. That’s such a cruel disease and incredibly difficult for the patient and the entire family. I know it can bring only a small level of comfort to know he’s finally at peace. Knowing what a difficult time this is, my thoughts and prayers are with you and your family.
I’m also sorry to hear you’re in this level of pain with your autoimmune disease. I applaud your tenacity and acceptance. You’re right, we don’t have a lot of alternatives and just have to live the best we can and strive for personal enjoyment out of each day that we’re granted. Sending you a gentle hug.