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Need your feedback re: possible pre - Tymlos routine ???

Posted by susanjohnston @susanjohnston, Mar 9 3:18pm

I will be starting Tymlos in a few weeks. Based on this community's discussions of possible side effects, I have designed a plan to follow prior to each evening injection. I will ingest the following: an anti- nausea dissolvable tab, an electrolyte chew, and soda crackers. I will then inject the Tymlos starting at Level #1 and increasing the dose every two weeks. I would be very grateful for any additional suggestions or revisions you may have. And when is a logical time to test for Hypercalcemia and Vitamin D after starting Tymlos?

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susanjohnston | @susanjohnston | Mar 13 5:21pm
In reply to @tangydog "Hi, My Tymlos was approved last week and a pharmacist will do the first dose with..." + (show)
@tangydog

Hi,
My Tymlos was approved last week and a pharmacist will do the first dose with me. I will titrate as I have been reading on here as I tend to get medication side effects. This is the first time taking medication as I was avoiding for many years. 69yrs and worried that its time. My endocrinologist informed me that Tymlos can now be taken for more than 2 years. I requested bone markers which he did not suggest but was happy to order. I agree that it's important to know where you are at before you start and then do a followup of the bone markers in 3-6 months of being on the Tymlos. My bone markers seem to be in the normal range for post menopausal. My DEXA scores are about 3.1 unchanged from 1.5 years ago so hoping all my exercise has been helping? Good luck

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Thank you.

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susanjohnston | @susanjohnston | Mar 15 2:48pm
In reply to @oopsiedaisy "I had my first dose of Tymlos at my doctor's office without any issues at the..." + (show)
@oopsiedaisy

I had my first dose of Tymlos at my doctor's office without any issues at the prescribed dosage. The doctor did warn me that there might be side effects but I never had any of the issues some face with dizziness, light headedness, or a racing heart. It did elevate my heart rate briefly (10% higher). My doctor advised me to take it at bedtime so I could lie down.

Perhaps you can ask your doctor about taking your first injection at their office so they can monitor you?

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Thanks so much.

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susanjohnston | @susanjohnston | Mar 15 2:49pm
In reply to @idlehands "You have to go at a pace that gives you peace of mind, but I'm inclined..." + (show)
@idlehands

You have to go at a pace that gives you peace of mind, but I'm inclined to agree with njx58, tho I believe there's an arithmetic error in there. Going up 1 click every 2 weeks would require 4 months to get to a full dose. But still... the idea is to take as much Tymlos as possible, not as little. Most of us who have had side effects have had them soon after starting. My view is that if you start at 1 click and have no side effects that day, the next day increase to 2 clicks, and continue like that. If you do have side effects, depending on how bothersome they are, you could hold at that dose for a few days and then try increasing it, or you could back down by a click for a few days and then increase it again and see how you do. I've been on tymlos 5 months and still occasionally have some mild lightheadedness; fortunately for me it's not bothersome and I expect I'll just put up with it for the duration. Every silver lining has a cloud, but they don't always bring rain.

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Thank you so much.

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