Need support re: my SIBO treatment

Posted by skim3737 @skim3737, Nov 2, 2023

Hello. I'm starting Xifaxan and neomycin on Monday for my methane SIBO and I'm really, really nervous. Any tips or advice? TIA!

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@skim3737

Thank you so much for your response. That's a lot of really helpful info. You mentioned your stomach being messed up for 4 weeks. Were you on neomycin for 4 weeks? And did you take it with Xifaxan/rifaximin?

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I was on neomycin for 28 days. I did not take it concurrently with rifaximin, but I have taken that one in the past and neomycin was worse. That said, conventional antibiotics like doxy and cipro are worse than either neomycin or rifaximin.

That said, and as respectfully as possible, you have gotten the same answer a half dozen times, any specific context about your specific condition, age, or constitution that makes you so neurotic? If you actually have SIBO, Western medicine has no better solution than neo + rif, I hop you have a doctor you trust not to prescribe you something that would turn you blue, punch your ticket and take the ride.

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@gboi

I was on neomycin for 28 days. I did not take it concurrently with rifaximin, but I have taken that one in the past and neomycin was worse. That said, conventional antibiotics like doxy and cipro are worse than either neomycin or rifaximin.

That said, and as respectfully as possible, you have gotten the same answer a half dozen times, any specific context about your specific condition, age, or constitution that makes you so neurotic? If you actually have SIBO, Western medicine has no better solution than neo + rif, I hop you have a doctor you trust not to prescribe you something that would turn you blue, punch your ticket and take the ride.

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Yes, I have more reasons for my neurosis than I can explain but the short of it is that I worked in healthcare for 17 years and don't always trust doctors, I was extensively over treated for stage 1 cervical cancer in 1998 and was subjected to 6 weeks of radiation that I didn't need. As a result my entire digestive system was fried. I've had more bowel obstructions than I can count and have had 2 intestinal resection surgeries and one surgery to clip scar tissue. I currently have at least one stricture in my small intestines along with multiple dilated loops. This SIBO treatment was actually my request because since my body was destroyed by a gynaecological oncologist 25 years ago, I have learned to research and advocate for my health. I am 5'5" and weigh just 82 pounds at this point. I was also diagnosed with generalized anxiety disorder at Mayo Clinic more than 15 years ago. Lots of causes for my cautious approach. My biggest goal in posting this was to get an idea of what others experienced while on this regimen so I know what to expect. And also it's nice to get a little pep talk since I'm homebound and don't have any family or friends that check on me with any sort of regularity. Does that explain it?

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Update: I'm on day 6 of the Xifaxan and neomycin and have had zero side effects, except for being extremely tired on day one and day two. Just thought I would come back and leave update for anyone else it may provide useful to in the future. 8 days to go after today.

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