Need a breast cancer buddy who has been through it (triple negative)

I am HER2 positive. Bilateral mastectomy on 12/1, Complications caused 5 more surgeries.
Chemo every 3 weeks for 1 year, plus an oral chemo pill daily. I take 2 different antinausea pills, morning/evening.
Most of the time they work, sometimes they don't/ I have daily diarrhea. (I've had a few accidents)
Fatigue is a big factor and loss of appetite, I'm constantly thirsty and drink ice water all day,
Fortunately, I don't need radiation.
**************
Stay safe,
Cathy

Are you taking tamoxifen.

American Cancer Society can connect you with a volunteer who has had your exact diagnosis and treatment. Very helpful. Reach out to them TODAY and get 'er done!

Ok, that would be great, as I did not feel that my doctor thoroughly
explained that I could understand. Also, they kept saying that nodules in my lungs were lighting up and too small to biopsy .
I asked for a referral to a pulmonologist and saw a wonderful doctor who looked at a small nodule that could be biopsied.
I had a biopsy in August of 2022 of that nodule, and it came back to cancer Me stage 4, hr negative.
I am not sure when my oncologist would order a biopsy.
But the pulmonologist did and started on a chemo pill.
I only took it for 40 days, because the side effects were to extensive for me to handle.
So is there a specific phone number I call to get in touch with American Cancer?

The number for the American cancer society is 800-227-2345. I just took this off of the website. I don’t know what services that will connect you with.

Hi Denise!
I do not know if we can connect by phone, or if it is even allowed, but I feel your anxiety, and know how you feel. I did not have chemo, but did have a lumpectomy and radiation. Today, 8 years later, at my yearly mammogram I was kept in limbo for an hour and a half while they kept checking the scar area. I walked in, optimistic, outgoing, and with no worries. I have so many other things happening in life right now, that I didn't allow that horrible anxiety to cross my mind. It quickly changed! I used prayer to calm myself while panicking. I can only hope and pray that at my next screening I arrive in my normal state of mind. Positive attitude is a must! I am a survivor, and live each day as if it is my last. My thought after treatment was, that I don't know how I will feel or deal, if I have to face it again. Today was a small taste of that. There are alot of support groups out there. I found a small local group through I think, the American Cancer Society. Lean hard on your support system, family, friends, etc. I thankfully was able to have light duty after surgery, and then worked through radiation at a very physically demanding job. I proved to myself how strong I was, and was already a survivor of many other challenges life had thrown at me, and I focused on surviving cancer. I wish you the best, and will keeping you in my prayers! Hugs! -Susan

I have had my estrogen checked three times. The oncologist doesn't order it. I had my primary and gynecologist do it for me. Mine actually went down and then back up. I see the oncologist in a few weeks and will discuss this with him. My lowest score was 8.

I will have mine tested in a couple of weeks. My oncologist put me on Letrozole for 2 weeks then took me off. I’ll wait until it gets out of my system to have a true reading.

Please let me know what your levels are. Why did he take you off of it?

Will do! One of the 3 areas of my bone scan was borderline osteoporosis. Switched me to tamoxifen for a year to begins after my radiation is done.