NED: the highs and lows of No Evidence of Disease

NED, No Evidence of Disease are 3 words that are music to my ears. I heard them last week and it was a joy to hear, but the practical side of me knows what up I’m up against. I’ve been off my 1 drug chemo for 1 month due to a move to a new place - shangrila I call it because we have a view of a lake yet live in a beach town. I didn’t want to get too excited until I got my CA19-9 results today - it is no longer in the normal range and way higher than I expected. When I first looked at the number it took my brain a few seconds to process it and then a few seconds later we had an earthquake here adding to the drama of it all. Good news is that the Revolution Medicines trial, phase 3 will be beginning any day now. However, being phase 3 you have a 50% chance of getting the “placebo”. Some will probably freak out when I use that term and say it’s not so - but it really is. This test is randomized so 50% will get the trial drug RMC 6236 and 50% will get some chemo drug they are trying out (but gemzar doesn’t come in pill form that I know of). My scan has been rescheduled to this month instead of next minth so I’m grateful to my dr for that, and I’m also grateful that he already put me on the trial list. Lastly, I’m grateful that I get to see my daughter graduate next month as I didn’t think last year that I would be here at all. Well, I’ll continue holding my head up high and carrying the torch for new beginnings. Prayers and blessings for all.