Necrotizing glad

Welcome to Connect, @baunch. It appears your entire message didn’t quite get posted. Two years ago you had an experience with a necrotizing tissue event? Did this involve hospitalization? If you could give a little more information it would be helpful to connect you with fellow members. Is there a particular question you’d like answered? How is the area that was treated?

Eighteen months ago I had a puncture wound while working in a botanical garden.Originally thought to be rose garden decease (sporotricosis)After 10cultures on my arm, all negative for bacterial, fungal and AFB. The raised infection sores grew up my arm. Complicated by necrotizing gramulomator. Hospitalized
3 times and have been on a wide range of antibiotics all this time, presently Bactrim, levofloxacin,and nuzyra.
Many months ago, contacted Mayo Jacksonville, not interested. My next step is use of VIKOR.

@baunch What a frightening, ongoing experience with this infection! So you’ve been dealing with this for 18 months already? Apparently this is quite the medical mystery. I wonder if you could try Mayo Clinic again after it has been quite a few months since you contacted them. At the original contact it may have been such that the triage team felt that your local team would be able to clear this. Did your local doctor send a referral? That can often make a difference.

I’m not sure what VIKOR is so I did a quick search to see that they are an independent research lab doing targeted molecular diagnostics. If not Mayo, then I hope you find answers to this ordeal you’re going through!

I have to ask, do you still garden?

@loribmt
Gardening? Yes but not to the extent I did at Fl Botanical Garden. Am not a master gardener like many I work with but I’m great at fulling weeds.

@baunch I’m glad to see you’re still able to be involved in tending to your garden. For those of us who feel a strong connection with our plants and love to garden it is really challenging to have to abandon that activity all together. I’ve had to limit my time now to just pulling weeds or deadheading flowers. But it still has me out admiring the beauty and serenity of nature.
I do hope you’ll be able to find the answers to your ongoing infection. How do you go about contacting VIKOR? Can you do this yourself or can your doctor contact them on your behalf?

My dermatologist, a Dr
at Univ Southern Fl, associated w Tampa General Hospital is taking care of me now.
She arranged VIKOR. The results of my cultures have also been sent to CDC. She’s asked them for further info regarding further testing. I’ll keep you posted on my progress, if interested.🦋🌷💐🌾🌹🌺🥀🌸
baunch

@baunch Yes, I’m most definitely interested. Plus anything you share here in Connect may be of great benefit to someone else going through a similar medical odyssey!
It looks like you have a wonderful doctor who’s doing her best to solve this mystery. I wish both of you success in finding the culprit and the solution!

Love all the butterfly and flower emojis. I’m down in Florida for the winter and so enjoy being surrounded by lush green plants, flowers and butterflies. All bits of nature that lie dormant in my home state of Wisconsin right now.
Looking forward to hearing from you.

By the way, Connect has 85+ health support groups. But some of them are just for fun such as
~What’s outside of your picture window today: https://connect.mayoclinic.org/discussion/whats-outside-of-your-picture-window-today

~Gardening and outdoors https://connect.mayoclinic.org/discussion/gardening-and-outdoors

~Journaling https://connect.mayoclinic.org/discussion/journaling-the-write-stuff-for-you/

Well, you get the idea. ☺️ Can I entice you further?

By the way, not getting too personal, I live in Dunedin, Fl. Are you anywhere close?
I’ll look into the 85 opportunities you mentioned.
Baunch

@baunch I’m up in the panhandle. So our gulf sand is the same but we’re further north. 😊