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Myxofibrosarcoma: What treatments did you have?
I was diagnosed with Myxofibrosarcoma. It was large and a high-grade tumor. I had my surgery and will start my radiation treatment next week. My oncologist also stated that chemotherapy scheduled. My pathology report came back with no evidence on malignancy. Is chemo still necessary. I know it is my decision just needed to get a second opinion.
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I am currently in treatment and being routinely monitored for recurrence. I think everyone is different, so it's hard to provide the info. Be prepared for a surgery, and most likely radiation. I think that's par for the course with sarcoma. The rest, your Doc will talk with you about when they know more about what you specifically have.
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1 ReactionSorry to hear about your diagnosis. I have it too, and it's definitely a shock to hear you have sarcoma!
You need to look for a sarcoma center. Mayo obviously has one. The Sarcoma Alliance has a list of Sarcoma centers around the country. https://sarcomaalliance.org/sarcoma-centers/
I suggest you start there.
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2 ReactionsHello @enver and welcome to the Mayo Connect Cancer support group. I can understand your concern and I'm glad that you found this forum. We have members like, @chuck138 @michellebanta and @4me who have this diagnosis as well. I hope that they will share their experiences with you.
I can understand you wanting to know about recurrence. Please know, however, that it depends a lot on the staging of the tumor. Have you had surgery or a biopsy yet? Do you know what stage this is?
I look forward to hearing from you again.
I am diagnosed with myxofibrosarcoma. Its at the back of the left shoulder. Doctor will tell me their plan to go forward.
I would like to know if someone has been treated for it and myxofibrosarcoma came reoccured. If true than how long was it from the time it was treated that it came back.
Thank you for any information you can provide...
I just found out I have a myxofibrosarcoma tumor in my left arm. Looking for surgeons to remove the tumor. We live in Boise, Idaho, so would like one in the western US.
Sorry for the absence. My MRI came back clear! So far, so good.
I am struggling with some surgery related complications (not lymphedema, but lots of swelling in leg and hip from surgery) so that's no fun. But I'll take a little swelling over the cancer every day!
Thank you so much for asking about me! I really appreciate it.
I am very happy to hear your results were good, too!
That is great news.😊😊
My results came back great.
How about your results?
Did you have your mri on a wide board machine?
Really helps with the claustrophobia feeling.
Have a great Labor day weekend
I just had my first 3 month follow up MRI, and they had me in that tube a long time too. It has made me paranoid! How were your results? Great I hope!
That's fantastic. Thank for the update!