1. < Sarcoma

Myxofibrosarcoma: What treatments did you have?

Posted by jonezzi @jonezzi, Sep 24, 2022

I was diagnosed with Myxofibrosarcoma. It was large and a high-grade tumor. I had my surgery and will start my radiation treatment next week. My oncologist also stated that chemotherapy scheduled. My pathology report came back with no evidence on malignancy. Is chemo still necessary. I know it is my decision just needed to get a second opinion.

Interested in more discussions like this? Go to the Sarcoma Support Group.

Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Nov 1, 2023
In reply to @enver "I am diagnosed with myxofibrosarcoma. Its at the back of the left shoulder. Doctor will tell..." + (show)
@enver

I am diagnosed with myxofibrosarcoma. Its at the back of the left shoulder. Doctor will tell me their plan to go forward.
I would like to know if someone has been treated for it and myxofibrosarcoma came reoccured. If true than how long was it from the time it was treated that it came back.
Thank you for any information you can provide...

Jump to this post

Hello @enver and welcome to the Mayo Connect Cancer support group. I can understand your concern and I'm glad that you found this forum. We have members like, @chuck138 @michellebanta and @4me who have this diagnosis as well. I hope that they will share their experiences with you.

I can understand you wanting to know about recurrence. Please know, however, that it depends a lot on the staging of the tumor. Have you had surgery or a biopsy yet? Do you know what stage this is?

I look forward to hearing from you again.

REPLY
enver | @enver | Oct 31, 2023

I am diagnosed with myxofibrosarcoma. Its at the back of the left shoulder. Doctor will tell me their plan to go forward.
I would like to know if someone has been treated for it and myxofibrosarcoma came reoccured. If true than how long was it from the time it was treated that it came back.
Thank you for any information you can provide...

REPLY
2 replies
lgshoaf | @lgshoaf | Oct 27, 2023

I just found out I have a myxofibrosarcoma tumor in my left arm. Looking for surgeons to remove the tumor. We live in Boise, Idaho, so would like one in the western US.

REPLY
2 replies
chuck138 | @chuck138 | Oct 25, 2023
In reply to @4me "My results came back great. How about your results? Did you have your mri on a..." + (show)
@4me

My results came back great.
How about your results?

Did you have your mri on a wide board machine?
Really helps with the claustrophobia feeling.

Have a great Labor day weekend

Jump to this post

Sorry for the absence. My MRI came back clear! So far, so good.
I am struggling with some surgery related complications (not lymphedema, but lots of swelling in leg and hip from surgery) so that's no fun. But I'll take a little swelling over the cancer every day!

Thank you so much for asking about me! I really appreciate it.
I am very happy to hear your results were good, too!

REPLY
4me | @4me | Aug 31, 2023
In reply to @michellebanta "My CT and MRI came back clean I am now considered in remission.I’m so happy and..." + (show)
@michellebanta

My CT and MRI came back clean I am now considered in remission.I’m so happy and so is my family.

Jump to this post

That is great news.😊😊

REPLY
4me | @4me | Aug 30, 2023
In reply to @chuck138 "I just had my first 3 month follow up MRI, and they had me in that..." + (show)
@chuck138

I just had my first 3 month follow up MRI, and they had me in that tube a long time too. It has made me paranoid! How were your results? Great I hope!

Jump to this post

My results came back great.
How about your results?

Did you have your mri on a wide board machine?
Really helps with the claustrophobia feeling.

Have a great Labor day weekend

REPLY
1 reply
chuck138 | @chuck138 | Aug 30, 2023
In reply to @4me "Hi Chuck I agree ct and mri Alscans can be very stressful especially when you have..." + (show)
@4me

Hi Chuck
I agree ct and mri Alscans can be very stressful especially when you have to wait a week or 2 weeks to see the oncologist for the results.
I just had my 6 mo ct and mri on Monday .
I was in the Mri scanner for 2 hrs and 40 min.
Now I wait till next week to get results.
My oncologist doesn't release reports till you see her in person.
So its a waiting game.
M

Jump to this post

I just had my first 3 month follow up MRI, and they had me in that tube a long time too. It has made me paranoid! How were your results? Great I hope!

REPLY
1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Aug 30, 2023
In reply to @michellebanta "My CT and MRI came back clean I am now considered in remission.I’m so happy and..." + (show)
@michellebanta

My CT and MRI came back clean I am now considered in remission.I’m so happy and so is my family.

Jump to this post

That's fantastic. Thank for the update!

REPLY
michellebanta | @michellebanta | Aug 30, 2023
In reply to @colleenyoung "Hi Michelle, How did it go on the 22nd? What did you learn?" + (show)
@colleenyoung

Hi Michelle, How did it go on the 22nd? What did you learn?

Jump to this post

My CT and MRI came back clean I am now considered in remission.I’m so happy and so is my family.

REPLY
2 replies
Moderator
Colleen Young, Connect Director | @colleenyoung | Aug 29, 2023
In reply to @michellebanta "I go on the 22nd for my CT and MRI. I’m still feeling cold all the..." + (show)
@michellebanta

I go on the 22nd for my CT and MRI. I’m still feeling cold all the time and tired. I don’t see a new lump forming on my forearm.

Jump to this post

Hi Michelle, How did it go on the 22nd? What did you learn?

REPLY
1 reply
View MoreView Less
Please sign in or register to post a reply.