Myxofibrosarcoma: What treatments did you have?

Chuck, I'm so glad to say that your worry was for "nothing." Clean is good. Enjoy the holiday just a bit more, right?

Thanks for the great resources. We're all good. Had my CT and MRI on Saturday, both came back clean.

@chuck138, you're not alone. Scanxiety is a thing. You might appreciate these related discussions:
- Scanxiety: How did you get through scanxiety?
https://connect.mayoclinic.org/discussion/scanxiety/

- How can I defeat my anxiety about medical tests and surgery?
https://connect.mayoclinic.org/discussion/how-can-i-defeat-my-anxiety-about-medical-tests-and-surgery/

Do you have a scan coming up?

Here's something I wasn't really prepared for. Scan anxiety. For the most part, I am a get-up and get on with things type of person, and I don't stress or think too much about Sarcoma. But when I am due for scans, as the date gets closer, it's a really nerve-wracking thing. It's odd. There's nothing that's changed that should cause me concern. No lumps, bumps, pains, coughs, etc. Yet, the idea of another scan and results really messes with me.

@lac74, walking without a cane is a huge accomplishment. I bet you're feeling happy. That's quite an accomplishment is such a short time - although I bet it didn't feel like a short time. You've been working hard to regain muscle and mobility. What tip would you offer to others who are new to this diagnosis?

Hi @thompta, how did the appointment with the surgeon go this week? It must feel good to have the stitches removed and the drain gone.

It's normal to be a little or a lot scared. I'm sure your family is worried too. You're not alone as there are others here who are walking the path just slightly ahead of you guiding you along.

Is radiation next for you? What questions do you have for others who've been there?

So happy to hear you are walking without your cane. Congratulations on your progress after such a difficult journey.
My myxofibrosarcoma took 1 1/2 years to diagnose. 1st surgery Sept 2020 and 2nd surgery Dec 2020.
Then had to be completely inmobile for one month. Then 3 months later 6 1/2 weeks radiation.
Then physical therapy.
It's been a long journey but so very grateful to still have my lower leg.

I was diagnosed with a thigh Myxofibrosarcoma on August 2nd, had my first surgery on the 3rd and on the 9th, after the pathology report came out, I had my second surgery because the borders weren’t clean. Started physical therapy the day after my second surgery and radiotherapy 6 weeks later for 6 weeks. My tumor was a bit less than 5 cm.
Today I started to walk without a cane. Feel happy.

Just found this site today. I had surgery on 11/13/23 to remove a mass on my hip. It was 8.5cm x 6cm and 3cm deep, it came back a myxofibrosarcoma. I see the surgeon tomorrow and hopefully have the stitches removed and this annoying drain. I really don't know what is in store yet. From what I have read radiation will be next after I see an Oncologist. A little scared for my family and myself, but we will get through this.

I am recovering after my surgery on Nov. 09. I will be seeing my Oncologist for his opinion on way forward once Biopsy report is available.
Take care....