Myxofibrosarcoma: What treatments did you have?

Posted by jonezzi @jonezzi, Sep 24, 2022

I was diagnosed with Myxofibrosarcoma. It was large and a high-grade tumor. I had my surgery and will start my radiation treatment next week. My oncologist also stated that chemotherapy scheduled. My pathology report came back with no evidence on malignancy. Is chemo still necessary. I know it is my decision just needed to get a second opinion.

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4me | @4me | Aug 31 11:40am

In reply to @michellebanta "My CT and MRI came back clean I am now considered in remission.I’m so happy and..." + (show)

That is great news.😊😊

4me | @4me | Aug 30 8:05pm

In reply to @chuck138 "I just had my first 3 month follow up MRI, and they had me in that..." + (show)

My results came back great.
How about your results?

Did you have your mri on a wide board machine?
Really helps with the claustrophobia feeling.

Have a great Labor day weekend

chuck138 | @chuck138 | Aug 30 1:04pm

In reply to @4me "Hi Chuck I agree ct and mri Alscans can be very stressful especially when you have..." + (show)

I just had my first 3 month follow up MRI, and they had me in that tube a long time too. It has made me paranoid! How were your results? Great I hope!

Colleen Young, Connect Director | @colleenyoung | Aug 30 11:04am

In reply to @michellebanta "My CT and MRI came back clean I am now considered in remission.I’m so happy and..." + (show)

That's fantastic. Thank for the update!

michellebanta | @michellebanta | Aug 30 10:26am

In reply to @colleenyoung "Hi Michelle, How did it go on the 22nd? What did you learn?" + (show)

My CT and MRI came back clean I am now considered in remission.I’m so happy and so is my family.

Colleen Young, Connect Director | @colleenyoung | Aug 29 2:22pm

In reply to @michellebanta "I go on the 22nd for my CT and MRI. I’m still feeling cold all the..." + (show)

Hi Michelle, How did it go on the 22nd? What did you learn?

michellebanta | @michellebanta | Aug 16 8:32am

I go on the 22nd for my CT and MRI. I’m still feeling cold all the time and tired. I don’t see a new lump forming on my forearm.

Colleen Young, Connect Director | @colleenyoung | Aug 11 4:11pm

In reply to @michellebanta "I’m curious. It’s been almost 5 years since my diagnosis and surgery. All of a sudden..." + (show)

Hi @michellebanta, have you received the results of your imaging studies yet and talked with your doctor? How are you doing?

gemmalt | @gemmalt | Aug 2 8:39am

In reply to @marshelle "Yes. My husband’s mass was in the elbow and axillary lymph node then nodules popped up..." + (show)

Dad had UPS sarcoma on his back and now has bilateral lung sarcomas – they won’t operate, he’s been on chemo for 6 treatments (Trabectadin), awaiting CT scan results to see if it’s holding it back 🤞

michellebanta | @michellebanta | Aug 1 8:36am

I’m curious. It’s been almost 5 years since my diagnosis and surgery. All of a sudden I’m starting to get so tired early that I actually have to go to bed. Maybe I’m just worried but has anyone else experienced this? I go for my CT AND MRI in a few weeks. Worried it’s come back.