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Anyone have Myoclonus (sleep starts): What helps?
Has anyone ever experienced a condition known as myoclonus? Aka sleep starts? If so, what was the remedy? And what was the cause?
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Hello @adam1234 and welcome to Mayo Connect. On Connect, there are several members who have posted about myoclonus. Here are links to some of these discussions that are found in the Brain Nervous System support group:
--Lance Adams Syndrome
https://connect.mayoclinic.org/discussion/lance-adams-syndrome-aka-chronic-post-hypoxic-myoclonus/
--Progressive encephalomyelitis with rigidity and myoclonus (PERM): Help
https://connect.mayoclinic.org/discussion/perm/
Are you interested in this topic because it is a recent diagnosis for you?
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1 Reaction@adam1234, I'd like to add my welcome. I'm also tagging fellow members like @captainanxiety8 @shaneilya @falconhawaii traut4 and @medskush, who may be able to add more about their experiences with myoclonus.
There are different types of myoclonus:
- Physiological myoclonus
- Essential myoclonus
- Epileptic myoclonus
- Symptomatic (secondary) myoclonus
See details of each of these categories in these 2 articles.
https://www.mayoclinic.org/diseases-conditions/myoclonus/symptoms-causes/syc-20350459
https://rarediseases.org/rare-diseases/general-myoclonus/
Have you been diagnosed with a specific type of myoclonus that may help determine the cause?
Yes, every night, between 10 to 200. The doctors aren't helping me either. This is terrible. I hate going to bed at night.
My husband has dealt with restless leg and periodic limb movement disorder since just before and after surgery for a benign pituitary macroadenoma. Neurologist suggested magnesium glycinate in an attempted help for headaches and we also saw great improvement in his jerking while asleep. Slight twitching/jerking has returned the last couple of weeks because of some new stress…his body no longer compensates with additional cortisol, so we deal with a variety of health issues as they come up.
I had this problem years ago and my doctor gave me quinine and it went away after only a couple of days. It was fantastic, but I don't think they prescribe it much these days because of its potential side effects.