68 yr old diagnosed 2 years ago with PMF, Jak2 mutation. Have managed foot pain symtoms with Hydrea but other side effects include: lose of appetite, purple discoloration in toes..when weather is below 60degrees, and most recently clouding in lungs. My local oncologist suggested Jakafi...but Medicare cost is $7000 a month. Since this is a symptom management drug and Not a cure...I thanked her for suggestion and passed. Still on Hydrea, she referred me to a Pulmanologist. I am fortunate to live in PHX, AZ and have visited specialists in blood disorders at both Mayo and MD Andersen. What I have found in being referred to rheumatologist, cardiologist and other specialties...they have no knowledge on this cancer....so the results are other head scratching and “must be the cancer”. Chasing symptoms and side effects is a minor inconvienece....overall I am active and stable and have no restrictions...so I get to enjoy the GrandKids...
Grateful for these types of group discussions....I like to follow the literature and forward to my Oncologist.....
I took serrapeptase for a while believing it could possibly 'eat-up' the fibrin - logically it should. However, it was rather expensive and I had no evidence that it did do this. More recently I was advised on this site to take sprouted broccoli powder, but within the liposomal mixture I make, as it can be destroyed in the gut otherwise. I have just begun adding a tablespoon to the mixture: I use a jewellery cleaner (see liposomal vitamin C on youtube). First I soak 6 tablespoons of organic sunflower lecithin for four hours in two cups of water and then put it in the blender for a minute. I then put 3 tbls of sodium ascorbate (vit C), 1 tbls of curcumin and 1 tbls of broccoli powder in one and a half cups of water and add immediately to the blender for another minute. I then pour the whole mixture into the jewellery cleaner for 22 minutes (this time recommended by a doctor who also makes her own) and pour into a jar to put in the fridge. I mix half a glass of the mixture with half a glass of vegetable juice and take regularly (not all in one go!!) with other supplements.
I should say that this practice, plus the other supplements I take, has brought my PSA figures down from 15.5 to 7.7. The nurse was astonished - she asked what I had done to achieve this and took down the list of supplements! (I take no medications except Anadin Extra every 24 hours for a nerve trapped in my back.)
Hi Steve,
I couldn't find any evidence-based mentions of serrapeptase being used to help treat myelofibrosis. I found no mention of it in the National Center for Complementary and Integrative Health (NCCIH) database. A few members like @steve1948@hishamhussain and @marzz have mentioned using it for lung conditions with varying success (or lack thereof).
I took serrapeptase for a while believing it could possibly 'eat-up' the fibrin - logically it should. However, it was rather expensive and I had no evidence that it did do this. More recently I was advised on this site to take sprouted broccoli powder, but within the liposomal mixture I make, as it can be destroyed in the gut otherwise. I have just begun adding a tablespoon to the mixture: I use a jewellery cleaner (see liposomal vitamin C on youtube). First I soak 6 tablespoons of organic sunflower lecithin for four hours in two cups of water and then put it in the blender for a minute. I then put 3 tbls of sodium ascorbate (vit C), 1 tbls of curcumin and 1 tbls of broccoli powder in one and a half cups of water and add immediately to the blender for another minute. I then pour the whole mixture into the jewellery cleaner for 22 minutes (this time recommended by a doctor who also makes her own) and pour into a jar to put in the fridge. I mix half a glass of the mixture with half a glass of vegetable juice and take regularly (not all in one go!!) with other supplements.
I should say that this practice, plus the other supplements I take, has brought my PSA figures down from 15.5 to 7.7. The nurse was astonished - she asked what I had done to achieve this and took down the list of supplements! (I take no medications except Anadin Extra every 24 hours for a nerve trapped in my back.)
After you click on Figure 1 of this article summarizing benefits you'll find just below recognition of kaempferol's poor bio-availability. This confirms liposomal delivery is the best approach for you. https://www.spandidos-publications.com/10.3892/etm.2019.7886
Hey, that is stunning! I don't think I have seen a detailed medical report of success by natural means in this condition before. I was diagnosed, myself, nine and a half years ago so must have had the condition earlier as I was only given a medical because of my age. My consultant, if he is not hosting me, says my condition hasn't worsened! So perhaps my combination of supplements (eight, containing 43 different substances plus liposomal vitamin C) is already working but I will certainly send this to my medical herbalist who is rather clever, himself, at digging out interesting references! I have already posted it on Cancer Compass! Many, many thanks and well done!
After you click on Figure 1 of this article summarizing benefits you'll find just below recognition of kaempferol's poor bio-availability. This confirms liposomal delivery is the best approach for you. https://www.spandidos-publications.com/10.3892/etm.2019.7886
Hey, that is stunning! I don't think I have seen a detailed medical report of success by natural means in this condition before. I was diagnosed, myself, nine and a half years ago so must have had the condition earlier as I was only given a medical because of my age. My consultant, if he is not hosting me, says my condition hasn't worsened! So perhaps my combination of supplements (eight, containing 43 different substances plus liposomal vitamin C) is already working but I will certainly send this to my medical herbalist who is rather clever, himself, at digging out interesting references! I have already posted it on Cancer Compass! Many, many thanks and well done!
Confusing is the word. Around 2009, radiation treatments for throat cancer left a friend's wife with a feeding tube because of scar tissue. He called Arthur Andrews Medical to ask if their Neprinol product would reduce the scarring - don't recall if another of their products was used. After following their recommendations for months no improvement was experienced. She stopped using the product.
I found an interesting research paper which suggests that the best inclusive substance for both quercetin and Kaempferol is broccoli sprouts. Dr Mercola sells fermented broccoli sprout capsules bu I have ordered organic broccoli powder from Buywholesalefoodsonline
and intend to mix it with my liposomal solution. But how I will be able to tell the effect I can't say. I am rather erratic in my sense of wellbeing and can never pin down the reasons especially as I am already taking a host of supplements and no sign of consultation until January 2021!
I, too am looking for confirmation ref serrapeptase and myelofibrosis. I took a nice product for a while which I found at a very good price (relatively). Now I have just contacted my medical herbalist because I have found the following comparisons with pure serrapeptase. It does sound as if it ought to be beneficial, doesn't it!
Confusing is the word. Around 2009, radiation treatments for throat cancer left a friend's wife with a feeding tube because of scar tissue. He called Arthur Andrews Medical to ask if their Neprinol product would reduce the scarring - don't recall if another of their products was used. After following their recommendations for months no improvement was experienced. She stopped using the product.
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68 yr old diagnosed 2 years ago with PMF, Jak2 mutation. Have managed foot pain symtoms with Hydrea but other side effects include: lose of appetite, purple discoloration in toes..when weather is below 60degrees, and most recently clouding in lungs. My local oncologist suggested Jakafi...but Medicare cost is $7000 a month. Since this is a symptom management drug and Not a cure...I thanked her for suggestion and passed. Still on Hydrea, she referred me to a Pulmanologist. I am fortunate to live in PHX, AZ and have visited specialists in blood disorders at both Mayo and MD Andersen. What I have found in being referred to rheumatologist, cardiologist and other specialties...they have no knowledge on this cancer....so the results are other head scratching and “must be the cancer”. Chasing symptoms and side effects is a minor inconvienece....overall I am active and stable and have no restrictions...so I get to enjoy the GrandKids...
Grateful for these types of group discussions....I like to follow the literature and forward to my Oncologist.....
Thank you, onamission. Quercetin is on the shopping list!
That's fantastic. I understand quercetin also lowers PSA levels so combining it with the broccoli powder may lower your level even more.
I took serrapeptase for a while believing it could possibly 'eat-up' the fibrin - logically it should. However, it was rather expensive and I had no evidence that it did do this. More recently I was advised on this site to take sprouted broccoli powder, but within the liposomal mixture I make, as it can be destroyed in the gut otherwise. I have just begun adding a tablespoon to the mixture: I use a jewellery cleaner (see liposomal vitamin C on youtube). First I soak 6 tablespoons of organic sunflower lecithin for four hours in two cups of water and then put it in the blender for a minute. I then put 3 tbls of sodium ascorbate (vit C), 1 tbls of curcumin and 1 tbls of broccoli powder in one and a half cups of water and add immediately to the blender for another minute. I then pour the whole mixture into the jewellery cleaner for 22 minutes (this time recommended by a doctor who also makes her own) and pour into a jar to put in the fridge. I mix half a glass of the mixture with half a glass of vegetable juice and take regularly (not all in one go!!) with other supplements.
I should say that this practice, plus the other supplements I take, has brought my PSA figures down from 15.5 to 7.7. The nurse was astonished - she asked what I had done to achieve this and took down the list of supplements! (I take no medications except Anadin Extra every 24 hours for a nerve trapped in my back.)
Thank you. This is saved.
After you click on Figure 1 of this article summarizing benefits you'll find just below recognition of kaempferol's poor bio-availability. This confirms liposomal delivery is the best approach for you.
https://www.spandidos-publications.com/10.3892/etm.2019.7886
Hey, that is stunning! I don't think I have seen a detailed medical report of success by natural means in this condition before. I was diagnosed, myself, nine and a half years ago so must have had the condition earlier as I was only given a medical because of my age. My consultant, if he is not hosting me, says my condition hasn't worsened! So perhaps my combination of supplements (eight, containing 43 different substances plus liposomal vitamin C) is already working but I will certainly send this to my medical herbalist who is rather clever, himself, at digging out interesting references! I have already posted it on Cancer Compass! Many, many thanks and well done!
Yes, fermented or not it appears utilizing your liposomal solution is the better approach. This link has quercetin as a component.
https://www.townsendletter.com/Dec2017/myelo1217.html
I found an interesting research paper which suggests that the best inclusive substance for both quercetin and Kaempferol is broccoli sprouts. Dr Mercola sells fermented broccoli sprout capsules bu I have ordered organic broccoli powder from Buywholesalefoodsonline
and intend to mix it with my liposomal solution. But how I will be able to tell the effect I can't say. I am rather erratic in my sense of wellbeing and can never pin down the reasons especially as I am already taking a host of supplements and no sign of consultation until January 2021!
Confusing is the word. Around 2009, radiation treatments for throat cancer left a friend's wife with a feeding tube because of scar tissue. He called Arthur Andrews Medical to ask if their Neprinol product would reduce the scarring - don't recall if another of their products was used. After following their recommendations for months no improvement was experienced. She stopped using the product.