Anyone want to talk about Myelofibrosis?

Posted by wellness3070 @wellness3070, Jan 5, 2017

Anyone out there wishing to discuss above diagnosis?

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

Profile picture for stimme @stimme

Hello, Onamission, thank you for this attention. I haven't started the diet. I thought it was just laziness on my part - of course, it may be intuition. Meanwhile where do I find the link you mentioned. I googled it but came up with nothing except an experiment of bringing up a chimp like a human!!

Jump to this post

See if this works https://nlm.life/25466670

REPLY

Hello, Onamission, thank you for this attention. I haven't started the diet. I thought it was just laziness on my part - of course, it may be intuition. Meanwhile where do I find the link you mentioned. I googled it but came up with nothing except an experiment of bringing up a chimp like a human!!

REPLY
Profile picture for stimme @stimme

... oh, and for muscle pain I use a CBD, MSM, Arnica, Turmeric, Rosemary, Eucalyptus etc cream called PURAGANIC - this is amazing. Every suffering person I have let try this agrees! I haven't had bone pain for a while, I have just realised! Perhaps I am doing something right? For nerve pain (spinal stenosis) I am afraid I take Ibuprofen (after food, of course) as this seems to be the only antidote to this!

Jump to this post

stimme, I researched Breuss 42 day diet and found a forum called cancercompass where the Breuss diet was the subject started in 2005 however one who started the diet never revealed if she completed it. I am a lay person but after reviewing the Bresuss diet I encourage you to avoid this incomplete diet. Your stable weight says keep doing what your doing. Your time is better spent incorporating components in the nim.life/25466670 link.

REPLY
Profile picture for stimme @stimme

Dear Onamission, thank you. This looks rather exciting. As it is, I am my normal weight still. I do take pure curcumin in my liposomal vitamin C (which I make myself and which a number of intelligent researchers are saying very high dose vitamin C (IV or liposomal) will also counteract coronavirus!) plus medicinal mushroom capsules, Benfotiamine, Saw Palmetto, a D3/K2/Mg capsule, Mg & zinc tablets and Patrick Holford's Optimum Nutrition Formula. I was taking Serrapeptase but cannot currently afford this, good as it is recconed to be for eaing up fibrin. I also take selenium.
I am also building up the courage (and planning) to start the Breuss 42-day-fast with my doctor checking on my health!!

Jump to this post

... oh, and for muscle pain I use a CBD, MSM, Arnica, Turmeric, Rosemary, Eucalyptus etc cream called PURAGANIC - this is amazing. Every suffering person I have let try this agrees! I haven't had bone pain for a while, I have just realised! Perhaps I am doing something right? For nerve pain (spinal stenosis) I am afraid I take Ibuprofen (after food, of course) as this seems to be the only antidote to this!

REPLY

Dear Onamission, thank you. This looks rather exciting. As it is, I am my normal weight still. I do take pure curcumin in my liposomal vitamin C (which I make myself and which a number of intelligent researchers are saying very high dose vitamin C (IV or liposomal) will also counteract coronavirus!) plus medicinal mushroom capsules, Benfotiamine, Saw Palmetto, a D3/K2/Mg capsule, Mg & zinc tablets and Patrick Holford's Optimum Nutrition Formula. I was taking Serrapeptase but cannot currently afford this, good as it is recconed to be for eaing up fibrin. I also take selenium.
I am also building up the courage (and planning) to start the Breuss 42-day-fast with my doctor checking on my health!!

REPLY
Profile picture for stimme @stimme

Hi, Becky, I was having acupuncture plus some pretty vigorous massage. I also took osteopathy. He believes it is two spots in my spine where the vertibrae are trapping a nerve. He helps. I will tell more next week.

Jump to this post

stimme, thank you for your contribution and I hope the acupuncture has helped. I came across this information and wondered if you or anyone here knows if this has developed as a myelofibrosis treatment:
https://nlm.life/25466670

REPLY

Welcome to Connect, @godschild56.
I encourage you to view this more recent discussion where you will meet @gael @wellness3070 @heartspace and others, who’ve shared their experiences with myelofibrosis.

You might also wish to view this information from Mayo Clinic: https://www.mayoclinic.org/diseases-conditions/myelofibrosis/symptoms-causes/syc-20355057

@godschild56, did you have any symptoms? Look forward to getting to know you better.

REPLY

wondering how you are doing now??? I am waiting on results from bone marrow biopsy to confirm diagnosis

REPLY

Hi, Becky, I was having acupuncture plus some pretty vigorous massage. I also took osteopathy. He believes it is two spots in my spine where the vertibrae are trapping a nerve. He helps. I will tell more next week.

REPLY
Profile picture for stimme @stimme

Hi, Kanaaz, Thank you for this. That side effect - muscle weakness - had slipped past my radar. I have sudden muscle weaknesses in my arms and legs. I also have spinal stenosis which could also cause that (and may itself also be a side-effect, of course - fibrin in the spinal column). The problem for me is that I am a violinist. I can still teach but I was doing popular recitals. Now I dare not chance this in case I drop my bow. This has almost happened even when teaching!

Jump to this post

Good morning, @stimme . So I understand you have a chronic disease and you’re a violinist. How do the two things affect each other? I also have a chronic disease and I find it has affected everything I do. You said that you don’t give recitals anymore because of weakness in your hands. That must have been hard to accept. Have you found anything you can do for the weakness?

REPLY
Please sign in or register to post a reply.