My world just crushed

Posted by earthmands @earthmands, Jun 18 6:56pm

I turn 60 soon and have been on SSI/SSDI for 10 years for fibromyalgia. Since then, i have had no help as doctors either don't believe in it or just ignore us. I have suffered all these years and just wish this was my last birthday. Fibromyalgia, as I see in many support groups I am in, ruins relationships with family and loved ones. As of days ago I'm homeless thanks to no help from doctors. I seen some hope on the horizon as the Mayo clinic in Rochester Minnesota has a fibromyalgia clinic and research program for us. I was so excited so I called. It sounded great. The first time in 10 year's , someone that cares for us and believes. Even gave me info for housing ideas. They had me fill out the paperwork online and submitted it. I have been so depressed all these years and no homeless because of fibromyalgia. I was ready to hit the road to Rochester, then, the devastating letter in my email a short time ago.
We appreciate the confidence you have expressed in Mayo Clinic and thank you for your recent request.

 

The Division of General Internal Medicine in Rochester, Minnesota has received your information. Unfortunately, demand for our health care services exceeds our capacity. We have thoroughly reviewed your provided materials to determine if we can add further value or treatment options to your care. Unfortunately, we are unable to offer you an appointment at this time. Please know decisions like this are not easy, Mayo Clinic strives to provide the best care possible to all of those in need. We recommend you continue your care locally."

I don't have a doctor or anything. nothing, Nada. I cant find care here. I would go anywhere in the country for help and cant find any doctors that even cares. You have crushed my only hope. No doctor will take me when I say I have fibromyalgia. I need help. I'm ready to just end it.

"

@earthmands, oh my. I know that letter can be crushing. The Fibromyalgia Clinic is often run at capacity at Mayo Clinic in Rochester, MN. The Fibro Clinic at Mayo Clinic in Florida can often accommodate patients. I assume you are located near Rochester and that why you had hopes of being able to go there. If there's any way you can make the trip, you may wish to inquire about space in Jacksonville, Florida. I know that's a long shot but wanted you to know. Here's the contact information if you wish to call Mayo Clinic in Jacksonville, FL http://mayocl.in/1mtmR63

In the meantime, I'd like to connect you with other members who also have fibromyalgia. Please check out and join one of these discussions:
– Anyone with Chronic Pain, Fibromyalgia or Hypothyroidism tried Keto? https://connect.mayoclinic.org/discussion/keto-diet/
– Fibromyalgia pain https://connect.mayoclinic.org/discussion/fibromyalgia-pain-28e002/
– What Distracts You From the Pain? https://connect.mayoclinic.org/discussion/what-distracts-you-from-the-pain/

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@earthmands My heart goes out to you. I have worked with fibromyalgia for over 10 years, also, along with other health issues. To say it is "no fun" definitely is an understatement! It is such a misunderstood disease, many feel it doesn't exist. If you are able, like @colleenyoung said, try to get in to the Florida campus for help.

For today, and everyday, we are here for you.
Ginger

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Wow. Thank you both. I'm in Fayetteville Arkansas. In the middle I guess. I would go there tomorrow if they would have me. I need to know right away. I can only stay here until Tuesday. Then I'm out in the cold, or hot as its been. I can't live in my van with this horrible disease. I'm so devastated. I need help. So depressed right now. I have the gas money to get there but would be low on funds after. Come on the first. Lol . I would love Florida. The ocean may be therapeutic. Humm? Is there anyway either of you could help. ??? I'll give you my contact info. phone number. Anything. Please.

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@gingerw

@earthmands My heart goes out to you. I have worked with fibromyalgia for over 10 years, also, along with other health issues. To say it is "no fun" definitely is an understatement! It is such a misunderstood disease, many feel it doesn't exist. If you are able, like @colleenyoung said, try to get in to the Florida campus for help.

For today, and everyday, we are here for you.
Ginger

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I wish they were open now. Can I get some help with this. I would go to Florida Tuesday if they would take me. I on my last leg. And that one is broken.

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@earthmands

I wish they were open now. Can I get some help with this. I would go to Florida Tuesday if they would take me. I on my last leg. And that one is broken.

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Things must seem so overwhelming right now. I am so sorry. Have you looked into any city or county resources to help with your current living situation? The groups or churches that operate the food banks usually have persons who can help with a housing situation. And you can look up resources for the homeless in your town. I used to volunteer at a homeless shelter and learned that there are many resources out there. Will you try to find some help so you can be less anxious? Then you’ll be more able to focus on your health. Please let us know what you’re able to find.

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@becsbuddy

Things must seem so overwhelming right now. I am so sorry. Have you looked into any city or county resources to help with your current living situation? The groups or churches that operate the food banks usually have persons who can help with a housing situation. And you can look up resources for the homeless in your town. I used to volunteer at a homeless shelter and learned that there are many resources out there. Will you try to find some help so you can be less anxious? Then you’ll be more able to focus on your health. Please let us know what you’re able to find.

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This area just is not for me. The doctors are non believers here. Been here a year and no help. So I'm moving on. Thought the Mayo clinic there in Rochester was getting me in, but I was wrong. Now they say Jacksonville Florida. Ok, I'm game. Real doctors that do believe is what I have to have. 10 years on disability for it and still no care from doctors. I sent in a request to Jacksonville but I'm calling also Monday morning. I'm 60 next month. To old to keep this run around going. I'm fine on food. Just cant stay in the van as heat and my sleeping I can't take. If they accept me, I'm gone… I will get help there. I'm sure being disabled and on SSI/SSDI, Medicare I can get help. Just tired my friend, to tired.

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@earthmands

This area just is not for me. The doctors are non believers here. Been here a year and no help. So I'm moving on. Thought the Mayo clinic there in Rochester was getting me in, but I was wrong. Now they say Jacksonville Florida. Ok, I'm game. Real doctors that do believe is what I have to have. 10 years on disability for it and still no care from doctors. I sent in a request to Jacksonville but I'm calling also Monday morning. I'm 60 next month. To old to keep this run around going. I'm fine on food. Just cant stay in the van as heat and my sleeping I can't take. If they accept me, I'm gone… I will get help there. I'm sure being disabled and on SSI/SSDI, Medicare I can get help. Just tired my friend, to tired.

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@earthmands please do share what you learn when you call on Monday. It is good you are still motivated to get help, despite all you have been through and are going through. Maybe this weekend would be a good time to start finding resources where you are to make sure you have what you need in place going into Monday. Do you have any support of friends or family? I know you mentioned that challenges with family relationships right now, but thought I would still ask.

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@amandajro

@earthmands please do share what you learn when you call on Monday. It is good you are still motivated to get help, despite all you have been through and are going through. Maybe this weekend would be a good time to start finding resources where you are to make sure you have what you need in place going into Monday. Do you have any support of friends or family? I know you mentioned that challenges with family relationships right now, but thought I would still ask.

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I have no one here. I am good for the weekend here. I cant get much for help here. I really want to leave this area as there is no doctors here that work with fibromyalgia patients. Were pariah here. Jacksonville Florida Sounds great. I hope to get in. 10 years on SSI/SSDI. No help at all from doctors. Shame too. Government says I have it, why not your PCP? I was ready to move to Rochester Minnesota. Now, hopefully Jacksonville Florida… I need help
I'm getting to old for this. Give them a poke for me…… please…. lol.

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@earthmands

I have no one here. I am good for the weekend here. I cant get much for help here. I really want to leave this area as there is no doctors here that work with fibromyalgia patients. Were pariah here. Jacksonville Florida Sounds great. I hope to get in. 10 years on SSI/SSDI. No help at all from doctors. Shame too. Government says I have it, why not your PCP? I was ready to move to Rochester Minnesota. Now, hopefully Jacksonville Florida… I need help
I'm getting to old for this. Give them a poke for me…… please…. lol.

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Hello @earthmands

Here is a social care website where you might some financial help during this time.
https://www.findhelp.org/. By putting in the zipcode of the area you are currently located you may find some help.
Will you give it a try?

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@earthmands

I have no one here. I am good for the weekend here. I cant get much for help here. I really want to leave this area as there is no doctors here that work with fibromyalgia patients. Were pariah here. Jacksonville Florida Sounds great. I hope to get in. 10 years on SSI/SSDI. No help at all from doctors. Shame too. Government says I have it, why not your PCP? I was ready to move to Rochester Minnesota. Now, hopefully Jacksonville Florida… I need help
I'm getting to old for this. Give them a poke for me…… please…. lol.

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Doctors don't help with a lot of things. People die because a doctor didn't really care — just prescribed some medicine and sent them away…or did not diagnose properly, or just didn't really help. So best to you anyway in finding care. With or without money And there are some medical situations that cannot be "cured." I've met many people who live (or die) with their problems. Sorry if it's no big help, but you have to sometimes do your own research.

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P.S. At least you were on SSDI for years. I couldn't walk to get to work but the doctor decided upon seeing me that I could work from home. (I couldn't. At that time anyway there were no work-from-hoime opportunities.) So at least you got SSDI. My brother in law is on SSDI because he's a mental case. He worked, he's not physicall disabled but he can't control himself. He was about to become homeless because we (my husband and I) couldn't take him in because he's uncontrollable. Now he's better, he asked friends to take care of him, a few of them took him in although he didn't give them anything from his SSDI income, they finally got rid of him. He finally got a very nice place to stay via the government and hopefully things work out for him. I'm sick, too, with a sick husband and couldn't cope with someone like my BIL in the house. Two of us (me and my husband) are enough.

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@hopeful33250

Hello @earthmands

Here is a social care website where you might some financial help during this time.
https://www.findhelp.org/. By putting in the zipcode of the area you are currently located you may find some help.
Will you give it a try?

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I did try. Most are for veterans. I'm not. And I plan on leaving this area hopefully next week. I used one of these last week. Free lunch there but they even said there isn't much for help here. A lot of homeless here. And most help is for single moms. They erre good people but for someone like me, were out in the cold, or heat as it is.

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