My wife is losing her love of life

Posted by fayhaiden @fayhaiden, Jun 27, 2023

Hello,

I don’t know where to turn to anymore. My wife is 29 years old and I can see the love of life draining from her eyes.
It’s been 4 years we’ve been fighting to find a diagnosis for what’s going on with her. Every test, every doctor says everything is fine. Everything is not fine.
Every symptom it taking its told on her and I can’t stand not doing anything.
All her symptoms correlate to Graves’ disease; test results normal.
Early onset menopause, tests are normal.
Kidney issues, normal.
Anemic, normal.
Crohn’s, normal.
Diabetic, normal.
Gallbladder, mostly normal.
Hormones, normal.
The list continues….
I’m so scared one day she’s going to take her life. I’m going to lose my wife if we can’t find out what is wrong.
Here symptoms are (not an inclusive list)
Heart palpitations
Abnormal sweating (always)
Clammy hands and feet
Heat intolerance
Over heating
Dizziness
Extreme fatigue (sleeps for 18+ hours at times)
Night terrors
Insomnia
Hand tremors
Swollen face in the morning
Excess eating and no appetite
Little to no menstrual cycle
Can’t loose or gain weight (always around 105-110 since she was in highschool)
Nausea/vomiting
Diarrhea
Depression (medicated)
Anxiety (medicated)
Intense stomach pain
Intense pelvic pain

She has been diagnosed with Pelvic Congestion Syndrome which comes with a $100k price tag for surgery that insurance won’t cover upfront. Supposedly this diag is why her pelvic has extreme pain at times but doesn’t check off 90% of her symptoms.
Her depression and anxiety has gotten better tenfold over the last 5 years, but since the new slew of symptoms in the last 6 months, her depression and anxiety has gotten worse due to the symptoms.

I am looking for a miracle.

FH

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Welcome fayhaiden.

I’m so sorry to hear about your wife. Living with all of that would certainly drain the will to live right out of a person. And out of you, seeing the one you love the most go through it. Hugs to you both!
I am not a medical professional, but from what you’ve described it sounds like possibly an endocrine system (hormone) problem or at least some of the symptoms. Problems with the endocrine system can cause widespread, seemingly unrelated symptoms and can be very serious. Please don’t give up looking for answers!
So many people have and are experiencing the same situation: life changing/interrupting symptoms and can’t find the answer. Things that can make life unbearable at times. Myself included. We would like to think that the medical “professionals” care, and really know their stuff and at this point in time should have a lot of information and treatments for diseases/disorders…. but they often don’t know as much as they claim. So, so many times it takes seeing doctor after doctor after doctor…before you find the cause and a treatment.
Please know, and let your wife know that she is not alone. Keep researching. Keep seeing new doctors. Email or chat with doctors, scientists and researchers that you can’t visit in person. Be your own advocates. And NEVER take passivity for an answer. The explanation IS out there and a treatment IS out there. Don’t let the ignorance or apathy of a so called expert deter you from looking for answers or from the reality of what you know is happening.

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Hi Fayhaiden,
I am so sorry to hear of your poor wife's problems! She sounds very ill. It seems like you have been doing the best you can for her but to no avail. At this point, you need to pray with her to God and pray often! Tell God how you both feel and what you need him to do. After all, God made your wife; and God can heal her. Just talk to God like you would your best friend. Even if you've never prayed before, start now and talk to God about your wife's problems and yours too. You don't have to pray in any formal way. Just talk to God. I'm sure he enjoys that since very few people talk to him anymore. It states in the Bible, ( I don't remember exactly where.) that "he knows of all your needs." I'm sure he knows of your wife's needs and yours too. Try new doctors and keep praying and have faith that everything will work out for the best.
I'll remember you both in my prayers too.
PML

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It sounds like she has been through a lot of testing. Sometimes when you are at "the end of your rope" with unknown issues, it is time to go to a center where a multi-disciplinary team works together to find answers. Have you considered contacting Mayo Clinic (http://mayocl.in/1mtmR63) or a large teatching university hospital near you?
Sue

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@sueinmn

It sounds like she has been through a lot of testing. Sometimes when you are at "the end of your rope" with unknown issues, it is time to go to a center where a multi-disciplinary team works together to find answers. Have you considered contacting Mayo Clinic (http://mayocl.in/1mtmR63) or a large teatching university hospital near you?
Sue

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So very sad to hear of the situation your wife and you are suffering .
My depression was diagnosed as Anxiety due to the Pandemic which was possible. I pushed further and was diagnosed with overactive thyroid which is now under control due to fitting medication.
I am hoping for better days for you and your wife.

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It may be far out but massage therapy can be a healing option -- even a simple head or foot massage by you. It's a primal way to show affection -- dogs and cats love being rubbed there heads, my senior cat surely seems to like it; it seems to help make connection with another being which I feel she has been missing, You probably have heard of the babies in a orphanage who showed marked health and development when an ordinary woman gave them human bodily contact. Maybe you want to contact a RMT to even see if they have anything to offer for your rather intractable problem?

I truly hope you keep looking for professional evidence-based solutions. What I did not see what was the catalyst for this downturn about four years ago? Obviously all didn't start suddenly; could that provide some clue?

Wishing you good luck.

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I’m sorry for your many troubles with your wife and as her mate and caregiver it’s a lot to carry. I know you’re in a helpful place here because so many of us are going through a lot of suffering and understand how difficult and frustrating it is trying to get the right help for your wife.. I was just wondering if you and your partner had covid vaccines or had covid infection…it’s just that the symptoms sound a lot like what people are reporting after having had covid or the vaccine…I sincerely hope that she will get the right help she needs, good luck to you both and don’t give up the fight.

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