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my question, Small Fiber Neuropathy, moving bowels, urinationg a lot

Posted by penn @penn, 2 days ago

I am in Pain all the time from,Small Fiber Neuropathy! My legs hurt so badly, burning, I use Aspercream, Lidocaine, now having PAIN S-1 L-2 L-3 L-4 moving my bowels at those levels, urinating a lot also, could something be pressing on my bladder?? I can't see my doctors!! because of the pain sitting, I take trazodone, Hydromorphone hardly works, Hydro basically not much at all!!!
Sojgrens, bad, itching. Trying to get appt. with new Rheumatologist!!! I have no life do to all this pain !!! Any ideas??

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Mentor
John, Volunteer Mentor | @johnbishop | 2 days ago

You mentioned pain in S-1, L-2, L-3, L-4 when having bowel movements. I have no medical training or background but it sounds like a herniated disk could be a possible cause. Here's some information from Mayo Clinic that talks about it.

"Worsening symptoms. Pain, numbness or weakness can increase to the point that they hamper your daily activities. · Bladder or bowel dysfunction."
-- Herniated disk - Symptoms and causes: https://www.mayoclinic.org/diseases-conditions/herniated-disk/symptoms-causes/syc-20354095

Can your doctor get you a referral to a specialist?

REPLY
valyruss | @valyruss | 1 day ago

@penn..sorry to hear you're in so much suffering...how was your SFN diagnosed? Thru a skin biopsy by a podiatrist? As one poster already mentioned " pain in S-1, L-2, L-3, L-4 could be herniated disc" which also could cause the SFN... You really need to find out exact cause of your SFN...
Based on my experience with SFN I recommend:
-an MRI of your cervical and back colon...a pinched nerve could cause the SFN
-a skin biopsy by a podiatrist to determine if you do have SFN
-an electrical nerve conduction test by a neurologist or reumathologist to see how your peripheral nerves works...
Hope this help....

REPLY
suetex | @suetex | 1 day ago

You've had some good sugestions to follow up on. And we all hate to see someone in unrelenting pain. What I would ask is are you actually excreting that much urine? Or just feeling like you need to? Also. as someone with Sjogren's I have finally had some help from IvIg which can be rather expensive but Medicare does pay for it. (I also have SFN but no sensory symptoms. I hope you find some help fast!

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