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My neurologist has suggested my symptoms may indicate CIPD
My neurologist has indicated that my symptoms and the results of her testing may point to a diagnosis of CIPD. I'm scheduled for an MRI to eliminate a diagnosis of pinched cervical nerves. If that is ruled out, then CIPD becomes a more likely diagnosis. I need to learn all I can about how to live with my symptoms and the treatment options that are out there.
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Hi @joanland, Here's a good reference site for learning more about the condition and what treatments are available.
-- Shining Through CIDP: https://www.shiningthroughcidp.com/
You might also want to click on search at the top of the page and type "CIDP +" a short few words of some question you have on CIDP that other members may have discussed on Connect.
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1 ReactionCan you please tell me more about your symptoms and testing that lead to your diagnosis? And how long it took you to get a diagnosis? Please keep us posted!
I’ve recently been referred from rheumatology to neurology. I’m currently ataxic and experiencing tremors after switching from Cosentyx to Remicade for Axial Spondyloarthropathy. I did some research after I had an EMG that showed axonal neuropathy and was thinking that perhaps CIDP might be the issue. My doctors are currently focused on ruling out MS and myelitis. At this point finding something, anything, would be a relief.
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1 ReactionCIDP is difficult disease to diagnose. I suffered from tingling and burning sensations, as well as loss of reflexes and weakness in my arms and legs. An MRI ruled out MS and an EMG with a GREAT neurologist (after 3 neurologists said nothing was wrong with me) ended with a diagnosis of CIDP. I chose IvIG as a course of treatment but please discuss all options with your doctor if this is the diagnosis. You can also go to the GBS/CIDP Foundations website - they have some very helpful information. Stay positive if you can. Most of all, be gentle with yourself and help your family learn about the disease, Their support will be so important.
http://www.gbs-cidp.org
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3 ReactionsGreetings, pm56: At present, I do not have a diagnosis of CIDP. The neurologist has indicated that what she sees on the upper extremity EMG does not indicate simple PN, so more diagnostic tests are to be conducted. She listed several possible diagnoses including CIDP and also a pinched nerve in my neck which could be the cause so an MRI has been ordered to explore that possibility. I've just started along the path to getting a definitive diagnosis.
Best wishes to you as you search for answers and treatment.
Thanks for supplying the url for the gbs-cidp.org website. It is now pasted on my desktop.
I so appreciate your recommendation for me to take care of myself. Sometimes that is hard.
Best wishes to you as you navigate this strange land. I may be on my way to joining you.
Understood. Thank you for the response. Best of luck 🙂